http://rayandmave.wordpress.com/2011/01/21/my-diary-so-cold-it-snowed-for-a-couple-on-minutes-today/
Just reading Debbies blog
And she talks about how we deceive people as we look well on the outside but we have so much going on in the inside also there is the feeling people think we are getting over it all and getting better because we are surviving longer than the Doctors predicted.
The 3 months – 2 years was without treatment but we have had such wonderful care from the Doctors and medical staff (Debbie had Prof Vogil)and we get the results of stable---- check my blog writtings
