I cant sleep

3 minute read time.

http://rayandmave.wordpress.com/

Another night where I cant sleep its because I have been thinking and worrying why my neighbour has acted the way she has.

I was maybe in the wrong that I should have left Dave and Ray and gone to see her but we were on our dog walk and I have to muster all my energy to do that, as I get the shakes on a walk , as I have often talked about.

Remembering our trip to Spain with the clear air in the Mountains

I then got to thinking that Im always so frightened about setting my nasty off and waking him up to carry on and do his worse.

I don’t talk about that side so much do I.

People keep saying how well I look and I do just want to look normal, be normal, as most of the time Iam normal, but then sometimes I feel so lonely as Im fighting a Cancer that there is no cure for.

I don’t give into the question “Why me” but always thinking how can I help people to understand, but then I don’t understand any of this myself.

I can only keep writing about how I feel and hope that will help others.

I get tired of the worry of how long have I got, all this “live for today” has made my world very artificial, as I strive to live a very selfish life where I do everything I want to do to make my life so exciting.

I have written a book, been in magazines and local papers and become almost a celebrity, how artificial is that and yet at the back of it all its because Im screaming “Bloody Asbestos please be aware how terrible it is and what a pretty name Mesothelioma for a dreadful disease” A word I never knew about until I heard it in the hospital 1.5 years ago.

I remember all my life as it plays in front of my eyes all the people I have met and all the places I have been to. The world is a wonderful place if you just live out your own life and stop worry about how others spoil it for you and yours.

If you are a caring person then you do try and speak up and say stop, so I’m saying stop, please stop and think of others and ban Asbestos Mines and also please find a cure for us.

We lost another warrior yesterday, so that’s 2 that we know of since Christmas and there must be so many more who are fighting tonight for a gasp of fresh air to fill their lungs.

So you see I feel set apart from the ordinary day to day that others around me in their Parkhomes are living.

They get up and do their housework and tidy their gardens go shopping and then sit around watching telly a lovely relaxing slow life while my life is flashing before me a rate of knots knowing that line 2 of Chemo is just round the corner.

Hey I have got very thoughtful haven’t I but maybe that’s how it goes that you have to let these thoughts out so that you relax and muster up the fight.

There are no set rules to this and its very rare that people sit down and write about how they feel but somehow I can and so I do and I hope that helps someone, somewhere to say, Yes that’s how I feel.

We are coming to a New Year again 2011 is here so my wish is that we all live the year to the best we know how and may it be a Healthy and Prosperous year for everybody.

Lets Raise a glass to a Happy new Year

Anonymous
  • Hi Mavis,

    Thank you for writing this as I can relate to some of what you are saying. Whilst I am far luckier than you - diagnosed Stage 4 bowel cancer with liver mets, I am being treated with curative intent but it is still an unknown quantity.

    I too have been told how well I look and am happy in one way that I don't look ill, but I want to scream - but you don't know how it feels.

    Expressing our feelings is important both as a release of pent up emotions and so that others can understand that cancer not only interferes with our physical functions but our physogolocical ones too.

    Sometimes I feel that people are being patronising - they are not intending to be but their ignorance of cancer and it's ramifications leads them to come out with the same old cliches.

    The one thing that should support you and hopefully, relieve you of some of your feelings of isolation is that plenty of people on this site can identify with your feelings and that in reality you are not on your own.

    I pray that you manage to keep that "nasty" at bay and continue enjoying life for a long time to come and that the happiness that you come across manages to conceal the 'menace' that hangs over you so that you can truly enjoy your life.

    Thankyou for your thoughts and wishing you a peaceful and Happy 2011.

    With love

    Cathie x

  • Thank you cathie

    I hope you dont mind but I have put your reply on my blog rayandmave.wordpress.com as it has pleased me that you spoke back to me and I don't feel so alone.

    Its not until you speak from the heart that you realise how you truly feel but Im always best early in the morning and when i cant sleep it seems to make me think.

    Good Luck and lets hope 2011 brings our dreams to us.

    Love mavis

  • FormerMember
    FormerMember

    Hi Mavis

    Unfortunatelly you are NOT alone!  I had exactly the same feellings even though I had 'only' breast cancer (curable, etc, etc, etc).  But I feel so lonely when I am with non-lobsided women.  Especially when they talk about cloths and looks and things.  

    However, here we are, you fighting with your Warriors, me with my 'runs for life' doing 'our bit' trying to raise awareness and help others.  And there are hundreds if not thousands like us!  At least another two of my colleagues (so that's three of us in one organisation alone) and all the thousands and thousands men and women I meet during my races.

    Dear Mavis - your blogs have been enourmous help to me: they helpedme to keep going when the fatigue set in.  And all those superb photographs of the sea!  You are most definetly NOT alone but always in my thoughts and prayers.

    Have a great 2011 - (and please keep writing those blogs!).

    All the very best

    Georgia XXXXXXXXXXXXXX

  • FormerMember
    FormerMember

    Hi Mavis,

    At long last we are seeing the real you, The one that cares and tries to understand. The Mavis who is showing her real feelings. about the Lady she really is. I hope you sleep well tonight.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Hi Mavis,  feelings at last that we all suffer from, whatever the type of disease we've got.  Trouble is you've been so busy making the most of your time left, and written a book about it  that it  makes me feel guilty for not doing much!  I know I've got a workings husband that makes a great difference, and my nasty has been back a few times, but we all know exactly how you feel.

    Keep postive you tell us all.......

    Love Viv