Day 14 meeting my brother for lunch

3 minute read time.

Day 14 out to lunch with my younger brother

Yes today is a good day as I’m off to Gillingham Savacentre to Lunch with Martin and Pam so I’m looking forward to that.

Well yesterday was a good day even though I was a bit worried about swollen ankles, as I do worry about my Kidney.

This one kidney just mustn’t let me down, Chemo can damage it, but I think its more the fact I sit for hours on this computer talking in Facebook and a forum having good discussion’s and sending emails to all my friends

Have woken up and they have gone down so the Kidney is working ok and think it might be due to lack of exercise.

So I will try and do more walking as I know Louis will appreciate that.

I did tidy the house, more washing and Hovering (Louis hair is very long and being a cross jack he is always Moulting)

I had a great idea of cutting an Antique table down to make a coffee table so Ray did that for me and we now have a grand coffee table.

He went to get a new shower cabinet but all the doors are on the wrong side so we have to buy one in Gillingham, as he saw just what we want at Screwfix

You may be wondering why all the new furniture, why all the decorating, when we have so much on our mind, well I will tell you.

We had friends, the wife was dieing of cancer and when we went to visit her she was in bed, I know it was a lot of work for the husband but we are talking of years of lazyness.

The house was a tip, no decorating done, dirty kitchen where you could see through broken floor boards and into the cellar.

Her clothes were shoved under the bed and to be honest I was pleased when she went to a Hospice to die, in clean sheets and a decorated tidy room.

When I was diagnosed Ray and I had the vision of our friend’s death, but also Ray wanted me to have anything I wanted and has worked so hard to that effect.

Like the table, one mention that it would make a lovely coffee table and –wham I get a coffee table.

I wanted an Otterman bed –wham that’s what I got.

It means all the Parkhome is how I want it and Ray wont have to touch it for years.

I walked the dog around for the first time on my own yesterday and he loved it, came back and cleaned the front room windows for Ray as its nice for him to have this rest period where life seems almost normal again.

I met a neighbour who questions that is having Chemo the right thing to do, is it worth being made ill and wasting what time I have left.

I can only say to her I have to try, some people have lived a good few years more by having Chemo.

Wouldn’t it be lovely if it shrunk the Tumour that is playing up so it gave me 2 years extra upping my odds to 4 years.

I live in hope that in that time a cure comes to the fore— every day is a bonus.

I cooked dinner again last night, Gammon Steak’ tomatoes and Jacket Potato. We finished the Apple pie and had Icecream

I’m drinking coffee again so proving my tummy is settled, so I’m happy with that.

I had a great chat with my dear friend Carol last night (my mad Scottish Cyber friend) and she works in the Lab of a hospital and sometimes looks at the biopsies of Mesotheloma Patients.

She has to use a stain, a perls Prussian blue which stains asbestos fibres blue

They look like a wee dumbell.

It would seem though that it is rare.

I hope she will comment on here and tell us more.

I’m off now to get ready and I’m going to have a great day out.

Anonymous
  • FormerMember
    FormerMember

    I'm having a home makeover as well. I had money saved that was planned for this but just hadn't got round to doing anything. I guess working full time made it hard to get organised, so now I'm home until at least February, it seemed a good time to start. To say I'm enjoying it, would be an understatement! Getting everything looking nice is good therapy. Unfortunately my hubby has never been good at home improvement so we have to pay someone to do it. He's says he can't be good at everything, sounds like an excuse to me!

    Anyway, hope you have a great day out. Enjoy!

    Angela x

  • FormerMember
    FormerMember

    What a lovely hubby you have - click your fingers and its done - you sure he's not a wizard.  Ignore me its half term holidays and my daughter has the Disney channel on showing "Wizards of Waverly Place" all bloomin day LOL

    Have a fabulous day out and I look forward to reading all about it.

    Debs xx

  • FormerMember
    FormerMember

    Hi I enjoyed reading your blog today, I am glad you are feeling better. I hope you don't mind me telling you my story of my husbands illness. He had the same condition as you do. He was diagnosed in July 2002. Because there is no cure he refused any intervention. He decided that he wanted life to go on as normal and asked me to keep the knowledge of his illness between us. This was very hard but we did, no-one knew until the day he died that he had been so ill, infact he worked up until a week before he passed away.                                              His determination to survive helped him to live a good 3 and a half years without any symtoms what so ever. In fact he was so well the Consultant was questioning his diagnosis. Anyway In Sept 05 we noticed lumps under his arms, these were excised and a second diagnosis was given of Mesothelioma, it was bad enough the first time but this time we knew it was the beginning of the end. Still he wasn't ill until Jan 06 when he got a chest infection, he never really recovered from that but he continued to work. I knew time was passing and I wouldn't have him for much longer. Eventually he had to go into hospital in March, he told his bosses that he had a hernia and was going in to have it fixed. That was monday he was in until friday when the consultant told him to go home and go on holiday and enjoy what time he had left. On the tuesday we woke up he sat on the side of the bed and collapsed, he died 2 minutes later in my arms. We had had a good 4 years to make many wonderful memories, we went on at least 4 long haul holidays a year, he took me to Australia for my 50th. He had worked with Asbestos for a total of 18 months when he was 17, he was 61 when he was diagnosed and a month off his 65th when I lost him. I believe that his determination to carry on as normal until the inevitable was what helped him live so long and a good quality of life. He was such a wonderful man and 3 years on I still miss him. I am sure he is with me in my battle. What I wanted to say is that each of us are different and our decisions for treatment are different. Now I opted for anything that will improve my chances of the ugly C returning. My best wishes to you and keep up the blogs I enjoy reading them. Love Julie XX