to chemo or not to chemo

3 minute read time.
that is the big question.its one of the things we have to face,and its talked about a lot, im no expert, but i only have my story to tell.this may be a long blog and im not exactly a wordsmith so for those of you who are scared run run, lol.so my story starts in 99, 2nd of jan my friend had coaxed me to see the doc about discomfort in my breast i`d had since a week before xmas, doc told me it was hormonal, come back if it persists,22nd jan,day after my 39th birthday, back to doc still thinks its hormonal but if it makes me feel better she`ll get me a mammograme,so if the doc isnt worried why should i. bearing in mind i never had a sick day in my life,my life was so good i thought i was dipped in gold, indestructable lovely hubby ,daughter, home, job, the works. my mammogramme app didn`t come till june, same day needle biopsy, (starting to worry now), come back next week for biopsy, 10th june i was told yes its cancer, lumpectomy,nodes removed but we got it all and doing some rads, 25, starting sept on tamoxifen for 5 years, your lucky we caught it early no nodes involved.finished rads in nov, and celebrated by getting tattoo on back,lol, well why not, as far as im concerned im done with cancer, x marks the spot,lol ok i need checks but thats only precaution.then bombshell no2,nine months after my dx, mothers day mum finds similar discomfort, only this time its further advanced than mine full mascectomy 20 out of 24 nodes involved,no treatment advised as the strenth of treatment needed might kill her and she may as well just enjoy what time she had left,( i was in yorkshire at the time and sold up and dragged my poor hubby and daughter back to belfast. when the doc here read my records he asked how i got on with my chemo, what chemo i said, he said my records said i had chemo, i didnt, he said,"i can assure you if you were here you would`ve had chemo".) My mum said well if im dying anyway what have i got to lose,so they threw the book at her (docs words), yes it was bad for her as she had other health problems but 9 years later she is cancer free.me, in the mean time getting on with my wonderfull life, was dx in the states,march 08 secondarys in liver and uterus, was told" go home if you dont want to die here," (bit longer than that but dont want to bore you more than i have to) no treatment too far advanced. so i came home, my doc her said i want to at least try, (mum was sat with me), he told mum to cover her ears, if you were your mums age i wouldnt, but your still young, mum then chirped in well you had to throw the book at me. he replyed well im afraid were going to have to throw a whole bookcase at elizabeth. so 3 to 4 months prognosis is now a year down the line and out of the last year i can honestly say ive felt good for 6 of those months feeling better all the time, yes a lot more chemo to come, up to 14 taxotere he says, it was 8 fec 100 last time, but you know what, chemo saved my mums life and couldve maybe saved mine if they had given me it in 99, so what, you lose your hair, so what you feel ill, during it, you may not know it now, but it could be saving your life. as it is, its extending mine im not ready to go yet, so bring it on.good luck to all of you going through this thing called cancer, cos when i do die i`ll know ive given it my best shot. thanks for listening liz xxx
Anonymous
  • FormerMember
    FormerMember

    Well said Liz,

    we have to give this thing our best shot, throw everything at it, we owe it to ourselves!  The will be a time when we say ok, enough but that time is not now, not today!  You go girl, I'm with you all the way we have a stack of cancerversaries to celebrate yet mate!!

    Love always

    Indie xx

  • FormerMember
    FormerMember

    too right indie, many cancerversaries to go, (ha ha mad laugh ha ha) can we do it? yes we can!!!!!!

  • FormerMember
    FormerMember

    Liz hun after talking with you last night I woke this morning early flippin 6.30 lol any ways let dog out and had weeeeeeeeeeee like ya do, was going to go back to sleep and daughter came in she just got back from hols in Turkey so it was natter natter now shes gone to bed for while and im in wide awake club.

    I thought Iknow I go look at your blog hun I am now in shock and can understand why you told me to read it, all what you been told seems like a mirror to what I have been told, I had just 11 lymph removed but one in fact was infected,which has caused concern to be seeing as I have had infection after infection since surgery, and continual pain accross back just above waist(well what used to be my waist lol) water and bowel infections have been a regular thing but all doc keeps doing is giving me anti biotics, I had one time that i had discomfort but not normal pain that i get with bowel problem, followed by so bleeding I did go to casulty on this occation but after test and x ray got sent home yea you got it lol more ant biotics, it was a high dose 1025mg given in two tablets to take 3 times a day, and told together they will sort this thing out but hey just 10 days after finishing them i was back to the bowel problem again no bleeding but pain and pressure on bowel and problems passing water too cus of swelling of bowel,I do suffer from diverticulosis and it always gets put down to this, you have opened my mind hun and im for sure going to call hostpital tomorrow to see when I can get to see someone that will listen and look into this for me, local hostpital seems to just keep palming me off so I am going to call the other one where I had treatments,and also where my oncon doc hides out, I dont want to wait till october, I am not happy with attitude of doc that did surgery hes got no time it seems to care to him your just a lump of meat with a hostpital number.

    Thank You Liz for taking time out for me last night, I love you way of thinking hun them beggers dont always get it right your mum proved it and now you can do the same!

    Thank you Liz Love and Angel Blessings Wizzy x x x

  • FormerMember
    FormerMember

    i am so pleased that i helped you look at the alternatives. i am always worried that i may be scaring people, when all i really want to do is help everyone get the best possible care. good luck. liz xxx