Living with Daisy - life with Fibromatosis

  • No change in Daisy who was happy in Italy

    FormerMember
    FormerMember

    Back from Italy last Wednesday for appointment with consultant on Thursday.

    Results - good?

    My consultant told me Daisy is not growing significantly, so my 'team' (Royal National Orthopaedic Hospital and University College Hospital Sarcoma units) is adopting a wait and see approach. I have a MRI and follow-up appointment in March 2012.

    I am not sure how to take the news, on one hand I am glad Daisy isn't growing…

  • On pain killers to get through Italian trip

    FormerMember
    FormerMember

    After 18 months of chronic pain in my right shoulder I have decided to take pain killers.

    I am pre-treatment, no surgery or other drugs, and have just about managed to deal with the searing pain and sleepless nights, that was until last Thursday. I avoided pain-killers before now because I was told they can cause drowsiness, but after nearly two years of poor sleep I have been drowsy most of the time anyway.