worrying again....

1 minute read time.

just wanted to express my thoughs and feelings.

Ok so was given the all clear in dec, and i though great can get on with my life.....wrong!!!  i cant help but worry about everything and anything. the slightest lump bump or ache i get my mind goes into over drive and i think oh god its come back but somewhere else. Like now for instance, i have had some mild back pain on the right side for a few days. its not all the time, but i am just thinking the worse. i know it is prob just muscle ache or something, but still i am in panic mode, cant help it. at night i sometimes find myself feeling nervous to lay on my side incase i feel a lump in my right side or back in my left, so i end up sleeping on my back ( might explain the back pain!!!!) just to scared incase i find another lump, because thats how i discovered it in the first place at night in bed when i rolled over onto my left side.

  i am on tamoxifen for 5 years and o zoledex injections. had chemo op and rads. is anyone else having these feelings?

I am just so scared about it coming back, dont think i could cope and i dread to think how my family would feel. i am trying to get on with my life,and half the time i am ok and i dont think about the past year, but at the mo its playing on my mind. my sister is going to have a baby, and so i really hope i am around for a long time to watch my little neice or nephew grow up, but the cancer coming back is always there in the back of my mind. I didnt realise that half the battle is what happens after cancer. didnt think it would be this hard to get back to normal. guess it is still quite raw and im still very scared about the future.

 

Anonymous
  • Hi Littlestar

    I think we are all the same. Every ache and niggle and we think the cancer is back. We forget that before diagnosis we would have just shrugged it off as just not feeling too good.

    I finished treatment for BC in Nov 08 and am on Arimidex for 5 years.

    Am having a full body CT scan next week prior to reconstruction and my mind is in overdrive at the moment.

    Only the passage of time will make us less anxious I think.

    You are not alone with your feelings. Have a word with your GP. A short course of anti depressants may help.

    Sue xxxx

  • FormerMember
    FormerMember

    Littlestar, I am exactly the same. I finished chemo on Tuesday and was told by my Oncologist that I am considered cured. The risk of recurrence is 20%. I know I should be thinking that there is an 80% chance of no recurrence, but I seem to be thinking bad thoughts most of the time. Everyone thinks I should be feeling over the moon, and in some ways I am, but the worry hasn't gone away. I guess we are not alone in having these negative feelings but hopefully it will get better in time.

    Angela xx

  • FormerMember
    FormerMember

    I'm with you there - I'd have a CT scan every day "just to be sure" . . . . .  

    However to keep some kind of reality check I've introduced a "two week" rule. Unless something dramatic happens, I wait two weeks if I develop any symptoms/aches etc. If they haven't gone away i see my GP. Not perfect but it sure helps (and I have an 80% chance of recurrence)

    love and gentle hugs

    Sharry x

    May 2008 diagnosed Angiosarcoma in breast treated by mastectomy in June 2008 and RT in July - Sept 2008 (33 doses)

    May 2009 diagnosed recurrence in muscle on back and surrounding skin treated by wide local incision. Clear margins on "lump" barely clear margins on skin - now "waiting for the axe to fall"

  • FormerMember
    FormerMember

    I tend to agree with Sharry on this one with the two week rule chic. I think we tend to worry about it coming back, I have a 50% of mine coming back but I also have a 50% of it not doing so. Don't waste your life worrying just have a life instead. Don't let cancer rule your life chic....love Carol x

  • FormerMember
    FormerMember

    Littlestar I can only agree with the above comments. I havent finished radiotherapy yet and I am already thinking thoses thoughts. Something I would have put down to muscle ache etc in my mind is already bone cancer !! I think the two week ruling that Sharry has is a good idea though.

    Maggs x