We've had a difficult 3 months. The pain in Pat's shoulder had been getting increasingly worse, excruciating at times, he's had a low grade fever for weeks, night sweats and irregular blood results but our consultant has been dragging his feet and has not been on top of Pat's case. When a liver biopsy came back clear he said he was "quite optomisic" but we knew better and our certainty that this was cancer…
We found out in September that Pat's cancer had spread into his lymph system, 2 scans later we were told it's in his liver and lung, 3 scans later we are still waiting to find out details of any treatment! It's such a slow process. Now he's scheduled for a liver biopsy on Wednesday to give the oncologist more info about the extent of the cancer before he decides on a treatment. In the meantime he's had…
Just as we thought we might manage a few weeks of normality after Patrick's op and before any more treatment he's been taken in to hospital with an infection. Went in on Sunday and they can't get his temp down. More scans and tests today to try and pin down what's going on. He's worn out and fed up!! Me too!!
Found out this morning that Patrick's cancer had spread to 2 of the lymph glands that were removed at the same time as his bladder. Not great news but we don't have much detail yet - this news came in a letter! Nice!! Hopefully he'll be able to talk to someone in more detail after the bank holiday. Until then we're in the dark!
Pat's doing well after his cystectomy and it's great to see him making small steps forwards. He is managing to transfer independently from the bed to his wheelchair (he's paraplegic). He made it down the garden for a while today and we enjoyed the sunshine.
It's been such a miserable spring and summer for us that we lay in bed last night thinking of nice moments we could plan. Not the unachievable like…
