hiya all. its been a long time since i ve been on here. i used the site a lot when trev was first diagnosed...but unfortunately i felt that although i met some lovely supportive people...others werent so. but spose everyone is different!!
thought u wud give an update after trevs treatment.....he had intensive chemo over 3 cycles....one week on 2 off. hair didnt come out til day before cycle 3!!! tumout bagain to shrink 2 days into chemo!! was amazing. chemo was up and down after first cycle....he caught a bug during cycle 2 and his blood count depelted during cycle 3 ...but he got thru it!! over xmas he went thru 35 sessions of radiotherapy...with one chemo during the week. managed well til 3 weeks in....then got sore xmas week. did well tho. started to use his peg during week 5. he recieved excellent care at james cook hospital reg pain relief etc etc and mouth care and this has helped a lot. the skin on his neck did burn...but with the right cream this eased and now, exactly 4 weeks after its completely healed!!!! he did have mucus issues for the first week after radio ended but thats also stopped. his mouth is a little dry sometimes but he s managin really well. lotsa water.!! he s started back eating what he can...and somehow has managed a chines take away and pizza! dont know how like!! just wanted to get his calories up. from diagnosis to now he s lots a stone. his hair is growing back...and not an afro in sight. we re off to see the consultant on thurs for a check up so fingers crossed. life s carried on pretty much as normal....he s been back dj ing and having the odd pint. we ve had some nights out...his speech is back to normal...and he only had about 2 weeks not eating solids....then super noodles bacame his best mate!!! well thats about all so far. hope this blog finds everyone in a happy place....or in a safe place for them. xx
take care
lisa xx
