tonsil cancer....day 4 after chemo...our story so far x

1 minute read time.

september 29th - back to darlington hospital today...trev was having his trachy tubes changes. his mac nurse was really pleased to see how well he looks after his first chemo cycle!!! she said how she can visibly see the tumour and tonsil are shrinkin back!! over the moon!!!! well we were only in there about half an hour so we had ourselves a look into town.....and had the most lush day!! didnt talk about cancer or treatment!!! just shoppin and fashion etc etc!!! was brilliant! he bought himself some things for his new house...which he only got the week of his diagnosis!! never really been fully settled in yet! he has to stay at his mams up the road unless im there...in case of  reactions etc etc.

we both goin for haircuts tomorro as we plannin to go to an indie night on sat night...and with being a pair of mods... we need to look right!! hahaha. its a bit strange really....we were told initially he wud lose his hair...bt due to a bad reaction they have changed the chemo combination and now he s on cisplatin and 5fu....and after takin advice on the mac site...they reckon it doesnt cause hair loss!! maybe a little thinning.well.....we quite excited!!! but if it does fall out due to treatment....we know its a small price to pay for yr life!!!! he reckons he ll buy a paul weller wig if it falls out!!.

so far.....all still gin really well. there is a little tiredness creepin in but he s coping so far. we shall see!

thanks for listening

lisa xx

Anonymous
  • FormerMember
    FormerMember

    Thanks for this Lisa, good to hear things are encouraging for you both. I am off with partner tomorrow for his second chemo, his lovely blonde hair has now nearly all gone, but we are learning not to mind, as you say, if the chemo works - small price. He is determined to wear one of those Afghan hats with the flat tops and rolled bits at the bottom - no wigs for him!

    Great to have days out not thinking about cancer - we are at the beginning of the journey and have spent a month in hosp/indoors, but I am a patient soul and look forward to shopping, pubs again in the future, for us both.

    Best Regards,

    Hope.

  • FormerMember
    FormerMember

    Glad to hear things are getting better,and your able

    to get out and about. Doing some shopping, hope

    you both are keeping clear of the Pubs.

    Take care and be safe Big Hugs Love Sarsfield.xxx

  • FormerMember
    FormerMember

    hiya hope and sarsfield

    hope...we been bit like that..all we ve seen since july /aug is hospitals etc. but while he s feelin ok we gettin out and about. just takin it as it comes!! he has a whole shoppin list of hats that he wants if it comes out. just waitn to see if it does now!!

    sarsfield....yeah all seems good at the mine. he s in good form for now!! docs have said to continue to go about as normal if he wants..go out for a drink ....do whatever..just in moderation....and if he feels tired then listen to himself.

    i thought they wud have said a big noooooo but they havent ...and i have specifically asked!!

    we shall see,

    love

    lisa xx