Kidney cancer from Diagnosis

4 minute read time.

I want to make a record of my journey in this unusual year and for me certainly unforgettable. I'm writing it for my therapy as well as for anyone else who is or knows someone who is going through similar experiences. 

5th September

It was a normal Saturday afternoon and I was tk meet a couple of friends in Farringdon for an early eveing drink. I was looking forward to it as it had been a difficult summer so far. Working as a Food and Beverage Manager in a London hotel my employers had decided not to reopen my department after they were allowed to re open. Therefore my position was to be made redundant, I was in the middle of the redundancy consultation meetings, my union were involved and the zoom meetings were becoming personal and felt more like a disciplinary than a meeting about termination of my contract. I degress, needs to say I needed my pint and company. 

My wife as usual was not to impressed, however she told me just to go and this I took as her granting me her blessing but first I needed to pee. Nothing came out, my pens swelled with the backing up of urine and a tiny bit of blood came out. Brushing this aside I left. By the time I was in Farringdon at around 4pm I excused myself and tried again. Nothing only a little blood. Getting worried I finished my drink in k e go and ordered another, thinking that the pressure will push what ever it was through.

It did not and by the time.it was 5.30 I was in agony.

6pm came and went, I had excused myself every ten minutes to shut myself in a cubicle to push as hard as I could. Only blood!! I starting to get looks from the pub security thinking that I was upto something else.

Eventually I called an ambulance trying to explain  how much pain I was in. Fortunately the operator took me seriously and after 90 agonising minutes I was j  the back of the ambulance having told my mates not to worry, I was convinced it must have been kidney stones due to stress. Mrs C, my better half was not answering her phone maybe with hindsight her telling me to go out wqs not an invitation and she was probably a bit, ok very pissed off with me.

In the ambulance, they gave me the gas and air which they give to women going into labour and asked if I preferred to goto Royal London or UCL, I shouted out which ever is closest. Whitechapel it was. Half an hour letter I was pacing up and down an empty room in the A&E department like a caged lion. At this point my dignity was disappearing  down the hour glass and should my promised catheter arrive without the professional to install it, I would have I sorted it myself.

After years of waiting (about twenty minutes), nurse arrived, bed arrived and a sheet was put over the window, not that I cared at this point. The young nurse took one look and disappeared saying g she will find a doctor. She came back with a senior nurse a sister who was actually a bloke (why are they not called brother?) and it was inserted, "just a small prick Mr C," "tha Ms very much" I replied feeling insulted, a needle was inserted into my arm. I had forgotten about what was happing south, then realised that I no longer felt the urge to wee. The cathereter had been inserted and the bag was filling up with blood coloured urine. Through the other tube with the catheter water was blown into little Nigel to clear out the blood clots. After I removed myself from the ceiling amd had taken a breath I felt a lot better. 

A knock on the door and my wife came rushing in, no longer mad but a look of horror and worry on her face, something that I will see a lot over the next few months. One of my friends had called and texted her and she had jumped into a cab to the hospital. 

Mrs C was unable to accompany me to the ward as a virus was doing the rounds, you might have heard about it. Anyway the next two days I spent lying with the tube in my willy and started to feel better. I had my book, phone charger amd pain killers to help me sleep. Their were only two other blokes on the ward and my curtains were closed. And the best thing for me, I did not even need to get up to go to the toilet as that was taken care off.

This was until I needed a number 2. I eventually swung my legs over the bed, found the bag and tried to take myself for a walk. Ouch!!! The tube had managed to get caught on the frame of the bed and it was pulling where you do not want it to pull. After carrying out various moves which had been perfected on a twister mat in my teens I was mobile. By the time I got there the moment had passed so returned empty handed, then after getting my legs tangled into the catheter tube, much tk the humour of a.nurse who had come to check on me. 

As I am the only one reading this and I feel like making myself a cuppa, I was discharged on 7th September with some pain killers and now my urine looked like, well piss coured again I was sent home with the promise of a CT and a bladder scan in the next couple of weeks. My journey south had begun but I had only redhead the Blackwall Tunnel. 

Anonymous
  • Two weeks later, it was an early autumn evening I had my first scan. The CT, still in good humour and slightly relieved that the camera inside my bladder appointment had been cancelled, which was meant to happen the same day, so I killed two hours in the London Museum after having a full English in the cafe next to Barbican Station.

  • Pressed the wrong button! Not sure how to add anyway this seems to work. CT scan happend, injected with some coloured dye, slightly dissaponited that it did not turn my pee blue but you cannot have everything.

    An agonising wait of only a few days, I received a wake up call from the professor at Barts who informed me that some spots had been found on my right kidney. I made light of it and asked how long do I have left to live, giving a nervous laugh. The professor ignored me and asked me to attend another appointment the next day at 10am.

    I arrived at Barts an hour early and waited and waited for 10am to come.

    When I was called I sat in the chair and staring at the professors diet coke can which he sipped out of every few minutes. 

    Its cancer, looks like it may have spread as its over 12cm long. He tried to upload a photo to show me but the computer was being stubborn. I informed him is it a life sentence, he replied that their are plenty of treatments available and whilst some people go in to remisham, some people do " I'm sorry to say but giving the size it may have spread to your lungs". I went quiet and wanted to cut the appointment short, I was introduced to a fantastic nurse who filled me in with the practice side and gave me lots of leaflets about Mcmillans and the st.margeret center.

    I phoned a friend if mine who worked in Hatten Gardens, he dropped everything and met me in the same pub where I had my peeing problem two weeks before. Before long we had been joined by other friends whi had all cut their work day short to give me support. I wasndeeply touched by the kindness and words from my mates who I only normally see when a footy match is on. I don't know most of their surnames or where they live even.

    I caught the last Victoria line train back and walked up forest road just thinking and staggering. It was a warm night and it was hitting me.

    One week later I was back in Barts for another CT scan and this time it was more kidney focused, I had finished my prostrate tablets and was assured that they part of me aling with my bladder were fine (The prostrate reducing tablets did have a strange side effect which I will not highlight here).

  • More tests followed and by the start of October I was waiting for Royal Freebto contact me.

    I was told cases get discussed on Wednesdays and I would hear by Friday. Friday I called the hospital and heard nothing, a promise that maybe as my scans were only done the week before I probably was at the back of the que. 

    The following Friday came and went, I was getting nervous, I knew by this point that it was only on my right kidney and maybe some lymph nodes. This did not stop me worrying that it had spread to my lungs or even heart since lla week last Wednesday. Physically I felt fine, overweight yes but other than that perfectly normal. I have a vision inside my head that the cancer was swinging from my kidney like a pendulum on  grandfathers clock. 

    Anyway after what seemed the longest wait I was called to attend the Royal Free on 25th October. My wife came with me as we were to meet the surgeon and have lots of tests ect.

    I was taken for a walk up two flights of stairs by the anesthest, being led by a wire connected to my finger like a puppy. I was invited to go up another flight of stairs, its all right I replied. My heart rate was 97bmp, she then banged the machine and right on que it leapt to 123 bpm. This it settled down after a minute or so meaning I had passed the fitness test.

    The operation was tonne carried out by a robot through a keyhole, however if it has spread to my lymph nodes this may not be possible as the surgeon informed me that he had never used the robot for this, but like a mechanic he knew a man who has. More tests followed MRI, echordigram to name two. I was jow familiar with the route to royal free I was flying without the sat nav. I had several leaving parties or pre-wakes over the coming weeks which were becoming harder to arrange due to the virus which was going around. I even managed to isolate before the op, helped by Boris who closed all the pubs in the country so that I would not be tempted.

    29th November at 9am I was introduced to the team, the original surgeon had been replaced by his matenwho was an expert in robotics and nodes. And just like that I was out.

    The operation went well and despite my kidney being stuck to my bowel all cancer had been removed along with a couple of nodes and my right kidney leaving his twin to literally take the piss.

    A long blog I know and I apologise for spelling ect as its done on my mobile. Its now one week later and despite being constipated for the first few days, I am feeling a bit better. Took three days to be able to lie on my side in bed and a day longer to be able to get up with out making a groaning noise like an upset orca. 

    Tiredness seems to be the one thing I did not expect. Maybe its the pain killers but I seem to need to sleep in the afternoon and by 8pm I am in bed. OK I wake up as still have lots of worries in my head, will the cancer return and when, what other treatment will I have, when will I be able to find a job, do I have enough money to last until I do.

    And last but by no means least, I have done sweet sod all since May but how come the box of Christmas cards are on my dining room table unwritten.

    Thanks for staying with this long winded blog and if you did not or were bored then thanks anyway.

  • Feels strange updating by replying to my blog, but not sure how todo it. Anyway last Friday ny wound decided to leak all over the floor. My wife became very concerned as did I as my new orifice would not stop. An ambulance took me to Whipps cross where it was clemaed and dressed. 

    I was discharged and told to come back for the next two days to the A&E at 8am as it was a quiet time to have the dressing changed. Antibiotics was also prescribed.

    Since Tuesday I am attending the urgent care place where they are attending to it until things start to heal.

    On the positive side, I am now walking my daily target if 6000 steps and attending my post opp. appointment today at Royal free. The surgeon on the whole seemed happy with my progress and announced I was cancer free!! Bad news is its a level 4 cancer so it could return and maybe to my.lungs or bones making it harder to treat. 

    I had a chat with the professor who explained in his factual and knowledgeable way that I qualify for a trial. Hqve until nextnweek to decide. A computer decides randomly if I am to be injected with the live drugsborna saline solution. Been told that it 70% people dk not get side effects which can range from rash to loss of breath and hospitalisation.  Bit disappointed that if my body is tobe used for medical science I am not given an expenses paid trip to Australia where they are also trialing this treatment. Anyway I want to throw anything I can at it. Been toldnI can have a pint but in moderation but not to restart smoking. Did not find giving up a problem, well so far so good. Had my first cigarette when I was 14. A Samsung roll up given to me by a class mate. Who has since sadly passed away from probably you can guess. 

  • FormerMember
    FormerMember

    Sorry for your journey, hope things are healed and you are in the road to recovery.