Harvest On Hold

2 minute read time.

FormerMember

22 Dec 2009

Hey All

Well have spent the last few months back and forwards to London having meetings about my stem cell harvest / rescue.

I had a short chemo 2 weeks ago then growth injections at home for 10 days but unfortunately got a water infection so my white cells were used to fight the infection rather than producing stem cells.

So now on antibiotics which are making me feel really sick and i have to go for another meeting on Tuesday December 29th to see what to do next.

I might have to do it again chemo / injections / and hope i dont get an infection or they said another option to get my stem cells is via bone marrow corkscrew (NO THANKS!!) which apparently takes an hour.

The bone marrow biopsy i had was bad enough and that was only for 5 minutes!

When they eventually get my stem cells and freeze them i will then have to stay up there for 4 weeks to have a ridiculously high chemo for one week which apparently takes you right to the edge, and then have my cells given back to me then recover for 2-3 weeks.

Still the first week i go for the chemo they put you up in a hotel and treat you as an outpatient so that will be interesting, my daughter who is 14 will be coming with me for that part, but am dreading the 2-3 week hospital stay after as i dont cope very well staying in hospitals i like my fresh air!

I am feeling ridiculously emotional at the moment with it being xmas and everything, I am trying to stay strong for my daughter but it's very hard. Her nan is staying with us at the moment which is such a big help, but yesterday i felt so depressed i just couldnt get out of bed at all.

Today i need to make an effort even though i feel like ****

alcohol helps when im feeling low but the hangovers i get are so evil it puts me off having a drink now. I feel so sad inside and am so fed up with crying all the time I dont know how to cheer myself up :(

Anyway here's wishing you all a lovely peaceful xmas and i hope you all have a lovely time, my thoughts are with those of you who are alone or single parents going through this hell alone, and to those of you who are very poorly hang in there!! :) xxxxx

johnr over 15 years ago

hI kels sorry to hear you got an infection and may need to go through it all again, I am guessing you have NHL. There are several active members who have been through what you are going through, it may be worth finding some of their posts about their experiences. Or mesage them they will help if they can. Graeme who posts alot is in a similar position.

Adam, Dave_L and sleepyjo have all had SCT.

Good luck hope you feel better and have a good xmas with your family, I will share a glass of white wine with you on xmas day lol and all other NHL'ers.

best wishes

john
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FormerMember over 15 years ago

Aw thanks John and yes i have non hodgkins (aggressive) ive had chemo for just under a year now but the stubborn bugger is still there, i cant wait to kick its a** :)

but i had a very good day yesterday i was up all day went and did the ugh xmas food shop and got my last xmas prezzie bits, although it whacked me out was nice to get out for the day :}

hope u have a lovely xmas hun i will post again after my tuesday meeting

((xmas hug))
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FormerMember over 15 years ago

ps: make mine a big glass ;) xx
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