Round 1 of chemo and scalp cooling!!

1 minute read time.

Hiya well yesterday i had my first round of chemo (epirubicin) and experianced scalp cooling.

Well just for once the hospital was running on time :-) there was a few tears because the nurse said my hickman line wasnt in the right place and was to far down.... then she didnt know if they could even use it as it had only been 48 hours since having it put in!!!

Anyway, i got set up on a drip the nurse then sprayed my hair with water and rubbed the conditioner in, we counted down to 3 and put the cap on my my head..... I laughed and said omg is this it?? lol it wasnt until she tightened the cap that i felt how cold it was. It was excruciating those first 15 mins thought my head would explode... at -5.9 0c!!! But i kept thinking of my daughter who is so scared of mommy having no hair and told myself not to be a wimp lol :-)

So side effects of round 1 havent been to bad, so far!! felt a bit sick last night and pretty bad cramps in my stomach legs and feet but it didnt last long and keep getting a dodgy taste in my mouth.

I always remind myself just how lucky i am to of caught this in time and it seems to help me through each hurdle, i stick my fingers up to the disease it to get through each day :-)

Hope your all well,

Emma xx :-)

Anonymous
  • FormerMember
    FormerMember

    glad to hear things have started. good luck with the scalp cooling

          Teresa xx

  • FormerMember
    FormerMember

    glad to hear things have started. good luck with the scalp cooling

          Teresa xx

  • FormerMember
    FormerMember

    glad to hear things have started. good luck with the scalp cooling

          Teresa xx

  • FormerMember
    FormerMember

    Hi Emma,

    I know what you mean about the sedatives not working, a glass of wine would have worked better for me! Your attitude sounds fantastic. Very positive, but you have to be when your thinking of your daughter eh. Can I ask how old she is? I have an 8 year old and although my chemo doesn't start for two weeks yet when I told her I was going to lose my hair I also said she could use my make-up to draw a face on the back of my head,lol, and face paints to create her very own designs, specially for me. She thought this was a great idea and is coming up with all sorts of ideas of her own now.

    Don't feel bad if you do decide not to carry on with the cold cap, our kids are more resilient than we think sometimes and do adapt very well.

    I wish you all the very best for you and your family throughout your treatment and hope that the side effects are minimal for you, so that life can continue as normally as possible for you all.

  • FormerMember
    FormerMember

    Hiya Maxine, ive heard about the cold cap that they offered you but mine is a different one and i look like something out of The Predator lmao I cant believe you was so ill off your first round but then i guess everyone is different!! I feel very lucky now because ive only had the sickly feeling, think i would rather just get it out of my system thought and then have a normal day ahead of me!! I think having the kids helps to be honest, it means no matter how rough i feel i still have to get out of bed in the morning and face the day :-)

    You go out for your meal and enjoy it hun, i also had long hair which is now in a bob i still have to wear bandanas and stuff though as i cant wash my hair as much, i still have some pride and dont want to walk around with greasy hair lol I bet even of i do loose my hair i will still end up having to shave my legs, would be just my luck lol Make sure you keep me updated.

    Emma xxxx