New(ish) to site.

1 minute read time.

              I have been reading the forums / blogs on this site for a bit now and thought it was about time I said Hello!

              I have a bit of a history with cancer  but my latest battle was a diagnosis in July 2009 of T Cell rich B Cell Lymphoma for which I’ve had an unrelated  donor stem cell transplant.

               At the moment I am 9 mths post transplant and have my 9 mth PET/CT scan this Thursday which I am already getting completely uptight about.  It’s not like I haven’t had enough of them and I know they don’t hurt (well, except the canula bit!) but I get claustrophobic.  I used to be able to cope with the aid of my MP3 player but a few scans ago I had a panic attack during a scan, since then I cannot stand them and get myself into a right state.  I’m asthmatic so they can’t give me any kind of sedative.  My specialist nurse did recommend trying Dr Bach’s rescue remedy drops but not sure if they will allow me to take these as it’s only water for 6 hrs prior and I can’t even take my meds.

               I feel really silly just writing this but have already started dreaming about it at night so obviously playing on my mind. 
Any suggestions as how not to make myself look completely daft on Thursday would be much appreciated!

Anonymous
  • FormerMember
    FormerMember

    Hi Kaze - first welcome to the site - just sorry you had to join.

    Not sure I can offer any real help with your concerns about the scans and the claustorphia, but think you have done the right thing by starting to talk about it on here

    Again I cannot suggest any medication they you could or should take - but I am 100% sure you are not alone in your in your reactions- please discuss it with hospital team - they are there to look after you and getting yourself streesed and loosing sleep will not solve the problem.

    It may help to give the Mac Nurses on here a ring - they have loads of experience and are fantastic and easy to talk to.

    Sorry I can be of more help - hope you get it sorted in time for Thursday and the scans go well for you - but if its not resolved by then, just take your time until they give you a solution.

    I recon a few more people off here will be in touch and their experience may be of more help than mine.

    Take care mate

    John xx

  • I understand how scary scans can be, so why not ask your GP for something to relax you? I explained the situation to my GP and she prescribed some sedative which helped.

    Good luck,

    KateG

  • FormerMember
    FormerMember

    hi Kaze

    I know you've said you're asthmatic and can't have sedatives- but so am I and I've had diazapam for procedures on several occasions- its worth explaining your problem to your consultant in advance to try to get s/thing for it.

    If you can't...try this...it sounds awful but it gets me through MRI's.  Think of something really embarrassing/rude/obscene- I then procede to worry that somehow the radiographer can tell what i'm thinking through the machine or somehow just knows and don't think about the scan.  Worth a try!

    Hope it goes ok and comes back clear.lx

  • FormerMember
    FormerMember

    hi Kaze,

    firstly welcome to this site, welcome to our family.

    secondly, re:scans

    i have not meet one person who likes mri's,ct, pet scans.  there are lots of techiques to deal with them. a few peolpe find listening to music which the hospital team can help you with. As for taking drops i would phone the hopstial you are having your scans and they can tell you if you can take them.

    CT scans are not the the worse ones they are quite large.

    all the best

    love jess

  • FormerMember
    FormerMember

    Thank you so much for all your replies.   I did phone the nuclear medicine dept today and they said taking the herbal drops should be fine so will give them a go.  Will also have another bash with my MP3 player so will try and find some good loud music to distract me and cover up the sound of the machine.  

    I have found in the past thou that, to try and distract myself further I sing out loud forgetting that although I can’t hear them in the room next door, they can hear me – not good!!

    I won’t be seeing my consultant before the scan but will have a chat with them about the sedatives as I have these PET scans every 3 mths and it was actually the nuclear med dept that told me I couldn’t have them.

    Thank you all again.  X