Im a 43 yr old white male that was told in april i had stage IV massive pc that was massive but localized i have a wonderful wife and 2 sons one 3 yr old and a 10 yr old i have been taking hormone therapy since april and am 5 weeks into radation treatments. i feel like the doctors are telling me what i want to hear because of my age and the fact that i have young children i just want the bare bone facts if anyone has been through this please respond
FormerMember
we know what its like...... i have had the extreem ends of the scale not sure which is worst. 99 lumectomy, rads, lucky it was caught early, mammogramms, check ups, complacency,.... 2008. tamoxifen caused cancer in uterus, found it in liver also... i was in the states at the time and was told 3 to 4 months to live go home now if you dont want to die here cos you will be too sick to travel. (i didnt feel sick) 2 weeks after hysterectomy i flew home. needless to say i am still here its been a long hard 18 months chemo etc.... like most of us, but i wish they hadnt told me the time scale.... because yes i have out lived it, but you sort of live your life day to day and cant make plans, and yes i have fitted in as much as i can, but you also wish you could go back to not knowing...... yes ok ..i have cancer but hope is important. and when they pretty much tell you theres no hope it can be very hard to keep telling yourself there is. but like i said i am still here... and i am in remission. m
my original oncologist told me right back in 99... if we knew all there is to know about cancer......we would prevent it not try to cure it..... the truth is ..... sometimes they dont know. and i think your own frame of mind can help.....youy will find a lot of info on the web...and on here but everyone is different even if people have exactly the same cancer. my mum is cancer free she had a scan .... she got it 9 months after me and it was a lot further advanced in 2000......she had chemo and rads ..... they didnt give me chemo they said i didnt need it.....
oh by the way i am 49 .....was 38 at first dx
find out as much as you can and take all they throw at you it just might save your life
I say this because its taken me a couple weeks to actually tell people.
Its hard to accept a diagnosis, but we learn to live with it by trying to learn as much about it as is possible.
Family will hopefully support you, but importantly i find these online sites are as much as family in support & more importantly you can open up as much as you like.
Personally ive survived an extra 22 years from when i was seriously ill with peritonitus (which turned out to be a further diagnosis of Crohn's).
I know ive taken life for granted...until these last few weeks where ive been knocked back again in the diagnosis of CLL.
Look out of the window, the skies blue & the suns shining, the kids are what will keep you going.
All the best,, today is the start of the rest of your life.
