help,please

1 minute read time.

i dont usually write blogs like this and i am almost always good at looking on the bright side and cheeping the chin up,but since last Tuesday when this pains started ive had enough.

Ive been to my gp,transplant people,surgeon who did my op,cancer nurse,and had a chat with a general surgeon and the best thing they con come up with for me with this  pain is that maybe ive had my bowel or colon stretched during surgery,or a tiny bit had stick to my wounds and with a bit constipation from all the pain killers ive been taking recently im just bunged up.Shit,thats not true,ive been to the loo twice in the last couple days,(too much info??) ive been trying to do gentle activities,ive taken warm baths and had hot water bottles stuck to my side since the weekend.Ive asked if its an ectopic pregnancy,not had a test done but told unlikely,ive ask about IBS,Crhons disease and ulcers but they said they cant tell as the ct scan i had done on friday the contrast didnt work and the arent keen to do anymore just now because of radiation.

Transplant dont want to see me till next appointment as no problems with kidney function,surgeon said it wasnt really his problem and if im still feeling the same next bloody week to get back intouch and they would re assess,i feel like im going mad,that they think its all in my head,it isnt im in constant pain that cam on two weeks after surgery but no one knows why.Ideas please??

I am now grumpy,tearful and have hardly left the house or the sofa for days,im off all other pain relief appart from paracetomol and had quite honestly thought about going to my gp and not moving till they do something.

Anonymous
  • FormerMember
    FormerMember

    I think a visit to your GP would be a very good idea. At least you can let it all out to him/her and demand that SOMETHING be done. Nobody in this day and age should have to suffer pain like this. Surely there's something they can give you and why do you have to wait another week before they investigate further??? I can't believe that a surgeon has said it's not his problem! Get to the GP pronto and get some answers. Hope to hear better news tomorrow.

    Angela xxxx

  • FormerMember
    FormerMember

    i had diverticular diease which caused infections had to have antibocts pain was terrible much worse than after surgery both for bowel and hysterctomy i used to tak paracetamol and ibrofen plus anti spam tabs didnt take any codine based pain relief as bad for bowel even now cant take them take care of yourself x

  • FormerMember
    FormerMember

    thanks mar,i cant take anything with brufen in it because of my tranplant but he has suggested to come off codiene and tramadol tablets to see if that helps things.

    How is your diverticular disease now,is there any food that you avoid?

    Leigh x

  • FormerMember
    FormerMember

    Hello Leigh I know the last thing you want is to be in hospital but do you think you should go to A&E? it sounds like no one is listening to you and maybe if they could see what pain you are in they would have to do something, at least it would be investigated hopefully.. I had to do this with my Dad because no one would listen and the GP kept giving him pain relief that didnt work...the hospital did help him he had an infection in his bowel.

    I have read your blogs Leigh and want to wish you well i really hope you feel better again soon.

    much love

    scarlet x

  • FormerMember
    FormerMember

    Hi Leigh  I agree with Scarlet a&e if no one listens to you, if they won't re do the ct ask for an ultra sound it may bring up something they can sort out! NO ONE should have to deal with pain. I understand that you can't use certain anti inflammatories neither can I ( I have 5 tumours in remaining kidney and it isn't functioning very well) but I do have other meds to help with pain but my pain is more arthritis related than cancer fortunately for me. Codeine and paracetamol help me and to treat constipation I use cod liver oil tabs daily and the occasional senna helps!

    Hope they get you sorted out you've had enough of it all lately, wish I lived closer to come and just talk with you and make you a cuppa! It does help talking to others who really know what hell you're going through.

    Jackie x