Producing a book. Contributors welcome

2 minute read time.

 

I watched my grandmother, the most special person in my life, die of cancer 7 years ago. The grief never goes away totally, but I've learned to live with it. Last August (2009) my partner was diagnosed with prostate cancer, and we haven't yet started having children of our own.

I'm so proud of him, he's researched thoroughly for months, has tried some very strange diets, one of them including very hot chilli peppers and garlic every day for breakfast, colourful drinks that I wouldn't dare taste, and he's been focussed on meditating, exercise and now has just been through a 2 month intensive ayveretic treatment in Sri Lanka. He comes home in 2 days, and we'll see what his PSA levels are next week.

This is the first time I've actually began to really think about it in terms of how I really feel. Since finding out last year, I've been very matter of fact and kept it at distance. The thought of seeing him go through what I saw my grandmother go through terrifies me.

But I'm only now just beginning to address how I feel about it, and yes, absolutely we still have much hope.  We've been lucky that he's had some time to try alternative ways before opting for an operation. He's been more open and accepting of the reality of it more than I, and he tells me that his perceptions about life have definitely changed... I look forward to hearing more when he comes home on Tuesday.

I'm also challenging my own thoughts and attitudes towards the subject of death and dying - and as I keep thinking about it, strangely enough, I feel like I'm facing my greatest fear. Of course I hate the thought of my partner getting ill, and losing him, which is why I probably haven't allowed myself to really feel anything about his diagnosis. Instead, I've been researching our western attitudes towards death and dying, even though it still feels a bit like a taboo subject, I think people are beginning to be more open about it now.

So I've decided to take on a project - to produce a photographic book about death and dying (with accompanying text) - to not only help myself come to terms with it, but maybe it will help others too. I'm finishing my masters degree in photojournalism so I'm dedicating the next 4 months to this project (up to Sept 2010). If anyone wants to join me in this journey, and hopefully provide support to each other, or if you just want to know more, then feel free to get in touch (via Private Messages).

 

Anonymous
  • FormerMember
    FormerMember

    well for 13 months i got more and more lumps come up in my neck and then  around my collor bone..then two big lumps in my groin and i never went for the biopsy they kept making me appointments to have...even turned up at the hospital twice and then wouldnt let mr perry do my biopsy....gave up trying....for 13 months  id rather die then have any needles or hospital stuff...even saw a shrink ...stopped going to my docs and it was only when she called in to see me as i hadnt been to see her for a couple of months that started more appointments.....still never went.....it wasnt till my legs swelled up and my feet swelled up and i couldnt get my doc marts on that i went to the hospital and they did a scan for a blood clott which was clear that i saw mr perry again and he finally persuaded me to let him do the biopsy ..i wouldnt let them put me to sleep so he did it when i was awake removing a lump from the back of my neck which was the size of half an egg......results came back and i was diagnosed with non hodgkins lymphoma stage 4..i then joined this site the same day i was diagnosed and was given a mac nurse...

    its only because of my mac nurse...some special friends on here and brilliant nurses and a couple of brilliant specialists that iv managed to go 23 months without missing one appointment...

    you could say my mac nurse and some special friends on here saved my life...

    for sure i spent 13 months thinking id rather die then go inside a hospital...

    but as i say...the fear is still there but i now know i can go in hospitals and i can have needles and chemo...

    now its not dying that scares me but knowing loved ones would have to cope with it that is my big fear..

    i often think....well i never knew when i was going to die before i got nhl......and i still dont.....so whats the difference ?

    i think its more scary for those left behind especially if they have a young family...

    of course thats just my opinion.......

  • FormerMember
    FormerMember

    Wow Graeme that's quite a story - and thank goodness you had the support around you to get over your fear to go to the hospital for treatment - definitely a life-saving accomplishment. By the way, some great photos on your flickr page! Thanks so much for sharing more of your story. Julie x

  • FormerMember
    FormerMember

    My feelings and situation are somewhat different again about death.  my mum lost her battle against lung cancer 11 months ago.  It was so difficult as we never discussed death and with mum being in total denial it would be impossible. She believed in god but i have never as i feel i need to see some sort of proof.  Right up until the end i had to pretend she probably had years left knowing the truth but in honesty i think we both could not cope with the situation.  I am obviously grieving still with such a big loss in my life but what upsets me more than anything is how she must have felt and how afraid she was and never said one word.  I feel i have let her down. I was the only person who was with her from day one as we only had each other and i was terrified on the day she died and took her last breath.  I feel so selfish now as i was so greatful a district nurse was with us as i went to pieces and was fightened.  Now i cant stop thinking about death and keep looking for some answers.  If only it was that easy to just think she has gone to heaven.  I cant.  Like Graham said we have no control of the fact it will one day happen to us all but for someone like me who never even thought about death much before it has now completely taken over my life. So yes we are all different and have go through this process of life and death but i hope one day i will feel some sort of normality again and come to terms and accept what has happened to my mum.

    diane

  • FormerMember
    FormerMember

    I was treated for breast cancer in 2005 and was pronounced "cured" and, so far, I am.  I went through the surgery, chemo, and radiation quite willingly and calmly - I was sure I was going to be fine.  It was difficult, but with the certainty (belief?) that everything was going to be okay in the end, I just kept going, putting one foot in front of the other and going on with life throughout.  

    But now my husband of 45 years has metastasized prostate cancer.   He is suffering with pain and weakness.  He has always been a very strong and tough man, and it is terrible and heartbreaking to see him fail and decline so rapidly.  In the last six months our lives have changed drastically, and I am facing the prospect that a year from now may find us without him.   We have talked about it in some ways but not others.   He has said in the past that he is not afraid of dying - his Nordic stoicism, I suppose.  We are "getting our affairs in order" as the saying goes, dealing with land titles and wills, etc.

    We are not religious people and have no faith or conviction that there is an afterlife.   We both believe that this present life is all we have and in our way we are trying to make that life a good life - our way is not what others would see as "good", but it suits us.  We just carry on.   We have 2 young grandsons to raise.  We have a farm to operate.   As far as is possible, we do the things we have always done.

    Whatever meaning there is to our lives we create ourselves.    I believe we are all seeking the good and to be happy, that most people are lovable and loving.  I have learned to be more patient and less judgemental, more accepting of what comes:  since we cannot rule what that might be, what is the use of railing against it?

  • FormerMember
    FormerMember

    Vision & Diane

    I've been thinking about your posts for 2 days now and wonder how to respond or what to say, as I read everyone's contribution with much care and consideration. I doubt anyone's words can take away the pain and anguish, but maybe there's some comfort in the support network like this site - people are so wonderfully kind and supportive. I'm hoping that the developing book I'm working on has the potential to offer some insight, strength and comfort to others through the sharing of thoughts, feelings and experiences of people like yourselves. So all I can say at the moment is thank you to you both for your openness and honesty.  

    Juliexx

    ps. Vision, I'm deeply moved by the poem you wrote on your blog page.