sometimes i feel totally alone

Hi Joan,

Soory you are feeling so low. There are many on this site who will totally understand how you feel, including me.

It's like being in a room with a thousand other people but having no one to talk to as they all speak a different language. You try sign language but you can never really make them understand exactly how you are feeling. Well that's how I feel anyway!

But there is hope, there's a lot of people on this site who speak the same language as us. so please keep talking to us and hopefully you will find many people you can connect with and not feel so lonely.

The chat room is a great place, it gets busy sometimes and can be difficult to follow the chat line sometimes but there are a lot of people there ready to help or even just to have a joke. The banter is good and everyone is made welcome.

Again sorry you are feeling so isolated if you just what a one on one chat then send me a private messeage and we can arrange a private chat.

hope you find someone to help

regards

pauline

Hi Joan - i empathise - its so hard for people to get in your head and understand what you are going through.  

Even tho my family friends and work coleagues are being brilliant they aren't going through it and only I can get my game face on.  

Big hugs to you.  xoxo

I know what you mean but I feel jealous too because my life is blighted by this disease and theirs isn't. Then I feel bad cos I shouldn't be jealous.

I get lots of support from this site so hang around.

take care

Jen XX

Hi Joan,

At least you've found this website where people have been through the same thing.  this is the site none of us want to be part of but I found lots of support by those who actually know.

Hope you feel a bit better soon,

Love and hugs

Fiona

hello joan dont feel like your a lone we are all in the same boat so if you need a chat we are all here for you day or night   x x x  billie