Frustration

1 minute read time.

Suffering a bit with frustration today. There's the stuff you know, and the stuff you don't  know. It's now eight weeks since I had my melanoma removed at the biopsy and six weeks since the result - it was 1.5 mil thick. The doctor who gave me the news stressed how urgently I had to get to see the dermatologists / oncolgists at Jimmy's. Hurry, hurry ... got there, but now it'sbeen three weeks of lolling about, with another two before the pencilled date for the WLE / SLNB.

I have no idea whether this passage of time matters or not. How active are any melanoma cells left around the original site likely to be? If they are there and they are left for two months, are they as likely to spread as the original MM? The hospital doesn't seem too worried, but as I said to my partner, if my destiny is to be killed by melanoma, then I'll just have to accept it, but I'm damned if I want to be killed by bureaucracy.

Because Jimmy's is a teaching hospital the SLNB is part of a clinical trial, and that has been one of the reasons for the delay - it requires a general anaesthetic and they couldn't fulfil one of their lists for want of an anaesthetist. I suspect that if I had taken the option of the WLE only, it would have been done by now.

Anyway moan over. Can't be positive 100% of the time. Actually, apart from the frustration of waiting, I'm still OK with the MM, I sometimes ask myself if I'm in denial, but I don't think so. Tonight Pizza for tea, and two meals out over the weekend.

Hope anyone who reads this is feeling upbeat and positive - let's all try and enjoy "now" and worry about later, later :0)

Jim xx


 

 

 

Anonymous
  • FormerMember
    FormerMember

    Now thats my Friend,A man who can make a crisis into a so what situation.A whats for you wont go by you attitude.

    So Jim you enjoy your pizza for tea. Go out at the week end and have yourself a ball. with your attitude I know you will. Tomorrow can look after its

    self. Good Luck.

    Take care and be safe Have a bit of pizza for me.

    Sarsfield.

  • FormerMember
    FormerMember

    Thanks Sarsfield, you have a great weekend too! Onwards and upwards, and failing that, any reasonable direction will do :0)

    look after yourself!

    J

  • FormerMember
    FormerMember

    Hi Jim,

    Understand your frustrations.  In this day & age I think private medical insurance is sometimes the only way.  I really couldn't offer any technical advice about the liklihood of spread etc but I always believed they prefered to act quickly to be on the safe side.  I think each case is pretty unique in its development.  My surgeon said he'd seen large tumours turn into nothing and seemingly inoquous ones end up being more agressive.  As you say, live for the day!  If there is nothing you can do about it, not worth spending time worrying.  Incidentally, they didn't do the SNB when I had my first WLE.

    Take care and continue enjoying life.

    CD xx

  • FormerMember
    FormerMember

    Jim, i'm feeling some of your frustration myself and its only been 2 weeks since diagnosis, one part of me wants to distance myself from reading about what could happen (which means i've been distancing myself from this site) and the other part wants to get on with it, get the WLE done and find out that all is well (for the time being), I feel like I don't want to burden my husband with my fears as I'm sure he has some himself tho he would never admit to it, so they're in there building up, anxious for that little brown letter to come through the post, I hope you get your appt soon Jim and it gives you peace of mind, I think its the not knowing that is the worst part.

    Oh and enjoy the eating out, I found myself saying oh bugger it lets do this and lets do that (being skint is the least of my problems right now..lol)

    take care Jim

    Mandy x

  • FormerMember
    FormerMember

    Skint, Mandy?  Do you have critical illness cover against your mortgage?  Did you know you can claim?

    Marsha x