Hello :)

Less than one minute read time.

I am Jilly 55 yrs old and have just been vaguely diagnosed as having breast cancer.Vaguely as the consultant would tell me NOTHING except after extensive tests just said 'prepare yourself for a mastectomy' but wouldnt answer any questions or refer me to breast cancer nurse to answer the million and one questions I had.

4 weeksand numerous tests later and STILL not having seen anyone I asked my GP to refer me elsewhere. I now have very high blood pressure and dizziness which I now have medication for but am terrified of what I am going to have to face and what the future holds for me,

Not getting any answers has made an awful situation worse!

Basically I have 2 huge masses( the size of a small orange) in my left breast which increase in size by the day but for me Thursday and seeing the new consultant seem an age away.

Has anyone else has these kind of experiences and do you eventually get better treatment?

Input apppreciated!

Jilly

 

Anonymous
  • FormerMember
    FormerMember

    Hi Jilly

    Sorry to hear you are having it so tough as my experience was very different. I did have lots of tests over many weeks but a mastectomy was never mentioned until tests actually confirmed I had cancer, although I myself suspected it was just a matter of time until they found it (no lump). Breast care nurses were immediately available to me, even before diagnosis and very caring and helpful.

    It seems you have been very unlucky with your consultant and I hope your new one is a lot more sensitive to your situation whatever the outcome maybe. I myself am seven weeks on from a mastectomy and now having chemotherapy but the future looks bright.

    Wishing you all the best with your new consultant and I hope you recieve the care and attention you deserve at what is a very difficult time. Stay strong.

    Best wishes and kind regards

    Maxine

  • FormerMember
    FormerMember

    monday morning phone your gp up and tell your gp you want a mac nurse [ macmillan nurse ]

    your mac nurse will sort out everything you want to know and help you whenever you need anything...

    i just dont get it when consultants , specialists wont tell a patient anything....

    who ever he / she is needs a kick up there...beep !

    i really must be lucky because i can pop in to castle hill hospital and see the specialists anytime.....or go to the local chemo / hemotolagy dept any thursday even without an appointment and someone will see me..and of course iv got a mac nurse who go`s beyond the call of duty...

    id come to the hospital with you if you lived nr me...

    i think people should name and shame these useless consultants....

    hugs...all the best...

  • I agree with all the advice above and am astounded that the consultant is talking about a mastectomy when he hasn't given a definite diagnosis of cancer. It is true that in order to get a diagnosis that the patient has to go through a series of tests. I had: mammogram, specialist mammograms,  scans, fine needle aspiration, and a core biopsy. The tissue taken during the biopsy is sent away for analysis and sometimes the results take time because the histology department is busy.

    I do hope you get answers soon.

    Best wishes,

    KateG

  • FormerMember
    FormerMember

    Hi jilly, I really sympathise with you without a doubt i found the whole waiting to be diagnosed the worst bit because your in limbo with your thoughts "Do I" Don't I" and you just dont know what to think. For me getting diagnosed was more relief then shock i found waiting two weeks between the biopsies and the results terrible. Mine wasnt straight forward either as i found the lump in lymph nodes 1st dr thought it may be lymphoma due to being young for BC. Biopsies came back with BC cells so then they had to find the lump mammograms MRI Biopsies etc more waiting and more frustration when you just want to get on and get treatment started.

    Consultant sounds very insensitive and you do right in getting another hopefully the next will be loads better i know you are counting the days till you go try and keep busy so days pass quicker although i do know you cant take mind off it because its a constant thought. Best of luck and its good to come on here and ramble on with others in same boat xxx