This is my first bloggggg!!!! Hope its acceptable. Had my bladder removed because of bladder cancer on 14th april this year. Getting on ok with urostomy but keep getting urine infections, trouble is dont get cystitis now, but goes straight to kidneys. So I feel really ill as soon as I realise comething is wrong. Trying cranberry extract tabs now, took 1st one today. For anyone with similar probs I will try to report how I get on. So feeling a bIt sorry for myself because no one underdstands how I feel, tired, achey, tetchy. Hoping this op will put me into remission, but I had some lymph nodes removed last november so has it gone anywhere else? Still only time and MRIs etc will answer that. Its only been 3 months since the operation, half way through the recognised recovery period so maybe I am doing and expecting too much too soon. I want to get back to my life, travel, pick up my grandchildren, go swimming, walk more than 50 yards, clean my windows!!!! My family have been wonderful, My grownup son and husband have looked after me especially since january this year when I endured chemotherapy. I hardley got out of bed for two and a half months due to nausea and extreme tiredness. I am usually pretty resiliant and feel that I have been positive most of the last 12 months. I was originally diagnosed July last year and have been in and out of Stafford and Stoke hospitals about 7 times since then.
I am seeing my GP tomorrow for more anti-biotics. Anyway after this moan I feel a little better.
Regards
JAS.D
FormerMember
Hi there, you're doing better than me as i havn't written a blog yet. Don't feel confident enough just yet. Don't have the same cancer as you but did used to suffer from cystitis on a regular basis and last year had to have an op for kidney stones which the docs think i got from having a platinum based chemo so i know how painful these conditions are and how fed up they make you feel. I do hope that you start to feel better soon. I see you've been in hospital in Stoke, my best friend and my God daughter live in Dresden, is that far from you? Anyway just wanted to say hi and hope the antibiotics work. Hugs Gill
Glad someone read my blog. I dont actually live in Stoke, I live near Cannock. I was under Stafford Hospital and had to be transfered for the operation. Visiting for my family was a real pain, but my husband, bless him, only missed 1 day in the 3 weeks i was in there even though I told him not come every day. Went to the docs today with my uti. More anti-biotics cos the one I'm on isnt working. If this doesnt work he thinks maybe I could try a more "serious" anti-bio, but has nasty side effects. Sorry to hear about your kidneys. Nuisance aint they?..Mine bleeding at the mo which is worrying. Best wishes for your health probs. Oh and get on with your first blog, we all have to start somewhere. Promise I'll read it. Take care.
Hi Jas, I read your blog with great interest as my husband has to have his bladder removed in October. In his case, he had to have the chemo first and he's about in the middle - just had the first of the 2nd cycle. I know it's a big op - my husband is quite dreading it but there is no other option. Sorry to hear about your kidney problems - hope the cranberries work.
