what has happened to this site

3 minute read time.
I joined this site about a year ago when i was first diagnosed with breast cancer. It was a lifeline to be able to speak to so many wonderful people about the practical matters that so worried me. As a patron of alternative and complimentary therapies life long I was so scared having cancer I had no hesitation following the conventional chemo.surgery/radiation route as after all, now out the other side, it has saved my life. I was diagnosed with stage 3 that had spread into my lymph nodes. I had many friends who cried no dont have chemo as chinese medicines would be less harsh. Had I listened to all that was thrown at me I wouldnt be here writing this thats for sure. Since then I have abandoned all alternatives as they may be ok to ease the pain of chemo side effects they do not cure cancer and thats a fact. I had help on here during chemo when i asked questions such as, why do i ache is this normal after chemo, yes it was and many replied saying so - therefore i was much relieved and mind put at rest. I had never been into hospital before apart from having children, what do i wear, whats to expect anyone else had this operation, yes of course, lots of replies with fantastic advice and again with radiation this January. My lifeline was Seanty, whose practical no nonsence sound good advice made my life so much easier. I was just shocked at his being banned on here and ask Why? Yes i know admin came up with explanation but its not good enough. I want to know why this site has now become so alternative based and allowed to do so, why is only full of jokes (not that i am against having a laugh dont get me wrong we need it at this stage) but where is all the good sound practical advise gone? In just one year this site has so gone downhill, there were maybe just a couple of you that are so hooked on alternative/complimentary being "practitioners" of it yourselves that seem to be smugly saying "yes we got rid of him" - but why? Many of us, like myself, would not take sound medical advice from you and you are not qualified to dish it out. I was also shocked at one of you actually giving out prescriptions on here, I know you dont do it now but how could you? We all know that alterntives are used to treat holistically and what works for you may be fatal to someone else yet you got away with it. Sean gives trained practical advise on what not to take and backs it up with facts and truth and he gets banned? I strongly urge administrators to think again. Not being disrespectful but, you are only youngsters just out of university - we are mostly older people on here who are or have been through cancer, this is not just a cold but a serious illness and surely this site should be for what we want shouldnt it? There are many alternative sites for those who think thats for them but this is Macmillan and should be run for us that are scared and just want to know if anyone else has been though the side effects/symptons we are going though, we dont want someone telling us that vitamin D works or passion flower seeds work we dont care, we can go elsewhere for this information. This site is basically not up to standard anymore, my oncologist at Barts recommended this site to me last year, but I would not recommend it to anyone now and told him that too unless it goes back to how it was. So please Admin, think again, and allow normal knowledgeable people like Sean back onto the site who are highly qualified in giving out the facts, not namby pamby alternative users.
Anonymous
  • FormerMember
    FormerMember

    We are missing Seanty. He had the bottle to front these posters, and put us right on the views they were trying to sell. His advice was always backed up. He might had been blunt with some replies, But that is in everyone interpriation of the advice. Theres' a saying "you got to be cruel, to be kind". This probably sums Seanty up. Since his ABRUPT departure these threads and posting have over doubled.

    So come on Admin reinstate Seanty. You know it makes sense.

    Why not put him on the staff, he make a good moderator.

  • FormerMember
    FormerMember

    I have really struggled to write anything - on this site or anywhere else. My Demise of Roland Ratso was so theraputic for me and from comments i received, others as well. Now I find it so depressing. I haven't written or posted for over a week and don't know if I will again. I have now made a second complaint to the Chief Executive and if I don't receive and appropriate reply I will be complaining to the Trustees and if they fail me I will complain to the Charity Commission directly.

    I ain't smiling on here anymore but that doesn't mena that you can't.

    Aye

    Drew