Breaking my virginity - the first post.

4 minute read time.

Everything was going along quite nicely thank you. 

I'd just been promoted at work and assumed responsibility for a portfolio of products worth about £12m to us. 

On top of that I'd just been made manager of Shrewton Utd - a semi professional football club playing in the Western league.  In fact even as the news of this appointment was being released to the local media, almost to the second, I got the phone call.......

I'd been into Hospital, day surgery to have what everyone thought was a squamous cell carcinoma removed from my left shoulder.  I'd come home none the worse for wear, parked the experience and moved on.  But now a couple of days later was Mr Khan the consultant ringing me to ask if I could come in for a chat, 'this afternoon if possible'.  It wasn't going to be good was it.......

Melanoma....kill you.....surgery......other stuff....it all just kind of washed over me to be honest.  This couldn't possibly be happening to me, not now, how bloody inconvenient.  Still, clear your head, knuckle down, put your faith in the experts and get through it.....whatever it is?

First off a CT scan to determine if the Melanoma has spread to any vital organ.  I'd picked up that if it had, then I was in deep doodoo, so I was sort of hoping it hadn't.  Tip number one:  if offered a CT scan at 9 O'Clock on a Friday morning seriously think about declining.  The results, you see, are not available until the next working day.  This means worrying for the whole weekend and it isn't just you worrying, it's a collective worry; wife, children, parents, relatives, friends & colleagues.  I knew it was a group worry by the amount of 'likes' my 'phew clear' facebook status received - news speads quickly on social networks.

So OK I lied a little - it wasn't completely clear there was an enlarged lymph node that needed further investigation, so a core biopsy is advised as the way forward.  Google.....oh my.....as somebody that suffers a phobia of needles this just isn't going to be good but as my daughter pointed it out 'It's for your own good Dad', so off I go to radiology.

Now I won't lie, it hurt.  My wife described it as brutal.  It was the singularly most unpleasant thing I can remember putting myself through (and I've been to war).  However I survived and after all 'it was for my own good'.  Unsurprisingly the 4 times biopsied node was positive for melanoma cells, so I was duly booked in to have a further portion of shoulder removed then grafted and to have the lymph nodes removed from under my left armpit.

A funny thing happened at the operating theatre - my technician was a lad I'd been in the army with.  It was strangely calming to have somebody you know sticking needles in you whilst discussing brass bands and so to sleep.......

Post op was OK to be honest.  A little pain but hey I'd just had bits cut off me so that wasn't a massive shock.  Slight inconvenience due to restriction of movement but no biggy.  Frustration like you wouldn't believe - they weren't letting me home until my drain was at 30ml or less for a day and it just wouldn't get there.  7 whole days it took but on the plus side at least I was properly rested.  I won't even mention the effect the antibiotics had on my stomach contents, suffice to say it wasn't pleasant.

And so to home.  Rest and recuperation.  Out patients visits to the plastics clinic and enrolement onto a clinical trial.  Six weeks after surgery everything just about healed up and back to normal.  CT scan done as a precursor to the trial beginning and bam......

Another enlarged lymph node needs investigating, this time in my neck.  Back into radiology, this time for a FNA (they stick a needle in your neck) which unsurprisingly shows the node to be positive for melanoma cells.  So a neck dissection is in order.  Google....no actually that can wait as I only got the news earlier today and it's late now.

So that's me up to date.  I'll try and be good and keep this current because even if it isn't read by anyone other than me, I've a feeling it will be theraputic to 'put it all out there'.  The whole process seems to affect those around me far more than me - I feel slightly detached from it all.  In fact, I actually feel fine which makes it all the more confusing.  Are these things normal?  Maybe you good people of Macmillan land can let me know?

One thing I do know for fact; I will be fit on the 20th of August come what may - it's the clubs first ever FA Cup tie and coincidentally mine too.  By my reckoning we're twelve games from Wembley, Come On You Shrews.

Anonymous
  • FormerMember
    FormerMember

    Hi Steve

    I enjoyed reading your blog and like the positive approach you have..................good luck and keep it up.

    Jane

    Ps good luck for cup tie too.

  • FormerMember
    FormerMember

    hi stevie

    i will follow your blog and progress. good luck with the treatment and the FA cup tie

    keep us all posted

    sending hugs

    wendie x

  • FormerMember
    FormerMember

    Your attitude is impressive! And it's good to have a goal to work towards, best of luck for the neck dissection and the FA cup tie xxx

  • FormerMember
    FormerMember

    Best of luck, Stevie!

    Marsha x

  • FormerMember
    FormerMember

    Hi Stevie,

    hmmm maybe a note to yourself never google anything from here on in. Its just far to scary and you'll find out what it is when the nurse sits smiles polightly then decribes the horror of the thing your about to have done almost secretly having pleasure in it ( look into their eyes, you'll see it I swear).

    I wish you the best of luck in everything. Anytime you feel the need to rant rave or just let it all out PM me anytime!

    Take care

    Tiggs x