Thought it time I gave an update. So far this month I have visited my GP 4 times mainly for the same reason, tiredness. Well was back at the GP's again today (will have to buy shares...lol) due to what seems like fluid in my ear, have had this problem before a few years back and the ENT department put a grommet in and that seemed to fix the problem. I have asked my GP for a referral back to ENT so that I can have the proceedure again. Have had bloods done again and got the results of my CT scan, it appears that there is active lymphoma in the T5 area so this will be monitored.....nothing like watching and waiting. As for the tiredness the iron tablets that I have been taking for the past 3 weeks do not appear to be doing anything and if my iron studies are not up then they will be doing further investigations.....oh yeah......something to look forward to.......not. In the last 4 weeks I have not worked a full 40 hours on the phones due to the issues with my ears, but have managed to stay at work non the less. I have had customers telling me I should go home as they think I have the flu and today a customer told me I sounded like an automated voice on the phone......I managed the phones until lunch time today and then for the rest of the afternoon I did other work that did not involve speaking with people apart from those in the office.
Anyway enough of my moaning. I am not that bad really....I haven't told the kids yet that the lymphoma is active again, though I am sure they know that something is up, I suppose I am not sure how to, any suggestions would be greatfully accepted.
FormerMember
hi jacqui i was so sorry to hear your news this bloody disease is never ending is it .you think every thing is fine then wham it pops up again. i am having a similar time at the moment my gp thinks mine could be back in my spine this time it was breast before but waiting for ct scan so will have to wait & see.i know what you mean about telling the kids its hard isn't they have gone through the disease with you then the elation of remission & then its like being back to square one again.mine know that i am having the ct scan . i dont know how old your children are mine i have five are aged between 16& 28 yrs so pretty well all grown up except my youngest though must admit this dosn't make it any eaisier to tell them . kids are pretty perceptive & as you say they will have guessed something is wrong maybe you should sit down & tell them that you are needing more tests as if they are guessing their imanginations could be running away with them . children are resiliant as you will know from what you have been through they will be upset love because your there mum & they love you but if you are honest with them they will respect that .i know when i was first diagnosised i made the mistake that my youngest understood what was happening she came with me to appointments with her two older sisters we had all said to her[ she was 15 at the time] do you understand whats going on but because we understood it could cancer assumed she did without actually saying the word. she kept saying yeah i know you could be ill well when the diagnosis came she went white with shock cancer wasn't the illness she was thinking of .so my poor baby found out the worst possible way . i don't know if i have been of any help sweetheart just wanted you to know i am thinking of you in england hope you get the right results from your tests .with love & hugs theresa xxx ps if you want to pm me anytime please do xxx
so sorry to hear your news like you my remission is over to. i've been in remission 4 1/2 months so devasted it's back already. i have two girls aged 19 and 15. i've always been honest with them and told them every thing from the start. this time it seems harder at the moment i dont know whether they can operate and wont know until 4th feb so the wait is agonising. i think they are finding this hard. my 15 year old broke down on tuesday a week after being told. we had lots of tears she said she wanted to be strong for me. we had a long talk and shes now a bit happier. i've still think by being honest is the best way. i always tell them and the rest of my family that if they have any questions they should ask me and not be afraid. my daughter has the support of a macmillian nurse who deals with children and helps them cope. i dont know if this helps but i wish you well. sha
