well yesterday i went down to glasgow for the mesothelioma action day which was held at the city chambers - the first one to be held in scotland.
the speakers were good and i was glad to see that they had a couple of people there who had meso speaking too (which was very brave of them) which i thought was quite inspiring.
at lunch time, however, when we had the chance to talk to the speakers i suggested that maybe next year they could touch upon the alternative therapies out there for people... just to make them aware that they are there. they wouldn't have to spend time talking about them but just to let people know that they exist and they could do their own research from there.
to say i was disappointed with the response i got would be an understatement. i was disgusted! yesterday was supposed to be about mesothelioma but "the professionals" wouldn't see past the chemo, radiography and surgery.
my dad is going to frankfurt to see prof vogl and he gets mistletoe therapy but these so called "professionals" can't see out of their little boxes to even suggest that these may be of help to others because they are not clinically proven. well here's the thing..... they might just help! maybe not everyone benefits but some will and surely that is better than doing nothing!!!
aaaaaaagggggggggghhhhhhhhhhhh!!! hope is everything and alternatives can give hope so why oh why can't they think about alternatives?? even just by having a page on the programme briefly mentioning them cannot hurt. if they were so concerned they could always put a disclaimer on it!
let people know if only to give hope that's all i'm asking!
