I've got you, under my skin

4 minute read time.

My appointment was on Wednesday to have my PORT fitted. I literally can’t describe how much I was shitting myself to have this procedure done while I was awake. My sister kept telling me the NHS weren’t going to physically torture me for the sake of it, but my brain was running wild with how this was going to play out. I had to be at the outpatient’s unit for 11am. I didn’t go down to theatre till 4pm. That’s a long time to sit with my own thoughts and work out how painful it might be to have a tube inserted in trough my neck and into my heart. Turns out it was totally fine! No pain and not even uncomfortable. It took about an hour and the team were so amazing telling me what would happen and keeping me distracted that it didn’t even feel that long at all. No pain killers were needed after either. My wounds are tiny and so neat. The surgeon matched one of the incisions to a line of my tattoo, so it won’t be seen once it’s healed. Sleeping has been a bit uncomfortable. It’s annoying me that I can’t wriggle about the place, but recovery has been a dream. I can’t wait to not have to fit with a cannula ever again!

That’s where the dream ends. (Warning: negative Nancy incoming)

I feel like I’ve been a pure moaning Myrtle these last few weeks. I just can’t brush off the shit that’s happening. I’ve struggled to find the funny side in anything and in general, I’ve been a massive mood hoover. I can acknowledge the pain in the arse that I’ve been. I’ve have not just a day, but literally a duvet week. It wasn’t until Friday that I got my life in order and got out of bed all day. I was smelly and dirty and felt gross. I didn't even care. As a treat for making it to the shower I ordered a mountain of Mc Donald food. As an adult I can reward myself with food. Well done me for brushing my teeth, here’s a Maccys. I was meant to be going on a girl’s trip to a lodge but with an MRI scan at 9am on Saturday morning (yeah I know, pure joke) I stayed home Friday night overcome with FOMO. Anyway, that was not to be. Another face slap to knock me down. Someone in our friendship group got Covid. I couldn’t risk being around any of the girls who had been in contact with them on the Friday. I had a massive breakdown and literally threw a temper tantrum on my front room floor. I was livid that this weekend that I had been dreaming of was no more. And even more livid that the rest of my mates were all still together isolating having a blast.

I reacted the only way I knew how. I ordered £60 worth of sushi from my favourite restaurant and I went wild internet shopping. I ordered loads of new rings (my fat sausage fingers will no longer hold my lush, good jewellery) and spend a disgusting amount of money on new bedding. If I’m going to fester and be super pathetic spending days in bed, I’m going to do it in 1000 count Egyptian sateen cotton sheets. It felt good.

Yesterday, the motivation to crack on with life and be on top form returned. I got up early and cleaned the house, at 11am I cracked open a bottle of Prosecco and made a mimosa and got in the bath. I pampered myself from head to toe, fake tanning, manicure and pedicure, face masks the lot. One thing to add to the positivity pile is that I’ve not had to shave or wax since my first chemo cycle. I’m obsessive about moisturising daily anyway but my skin is super soft too. I’ve taken the advice online and stuck with black gels on my fingers and toes and so far so good, my nails are growing at normal pace and they are still strong.

Last night disaster struck again. Every time I have a nice day, cancer has to fuck it up. I got an infection so another trip to hospital and antibiotics for a week. This sounds like a lie, but I was really looking forward to going back to work today. I felt like I needed some structure to my day, to get up and have something constructive to do and not just laze about. Instead, I spent all morning on the phone to the oncology ward and my GP, arranging prescriptions and ensuring everyone knew what’s happened and what the plan is for this week. They wanted to push back my treatment but that is 100% not happening. I feel totally fine. At 1pm I sacked off trying to work today. Feeling again like another day had been taken away, I watched Netflix and rolled my eyes at myself shaking my head. That’s just my constant state of play to myself about my situation. It makes me feel better that I acknowledge its crap.

Let’s try again tomorrow. I’ve only got 3 days now then we’re back for round 3 of chemo.

Anonymous
  • The darker the better but yeah you could use any colour!

    You absolutely got this! No matter what they throw at you at your appointments you'll handle it Hugging and if not, take my advice and eat shit and drink cocktails. It really helps haha.

    Oh am so glad you've started your own blog! I'm buzzing I can help others along the way but getting it all down in writing helps get it off your chest and out of your mind so much. Its like a little therapy dump.

  • I'm so glad I had the balls to come on to this site today. My story is almost identical to yours. Felt my lump on 1st April, breast clinic 28th April, told that day. MRI and CT followed. Tumour was bigger, 7cm and also in 2nodes Disappointed. I've to do 4 rounds of EC followed by 4rounds of Paclitaxel and Carboplatin. Mines is Trip Negative Scream. Had first chemo 2nd June and my third is next week. My second chemo seemed to hit me hard too so dreading this next one. The main thing that has really made me struggle is my mindset. I feel like I'm spiralling out of control with no way to pull myself back. I think I will start my own blog on here though. I've just been too scared to come back online as when I was first diagnosed, I googled and it was not good.

  • My story is so similar to yours. I'm so glad I came on here, I don't think you have been moaning, if anything it's nice to see that  I'm not alone in how I am feeling. I might start my own blog.

  • Hi Oh my goodness they are almost identical! I'm in for my 3rd cycle tomorrow and also dreading it! same here, the 2nd round ht so hard Tired face I'm half way through though and same for you! We've 100% got this. please don't be scared. You can message me at anytime! its so nice to have people to talk to who know what you're going through. I spent all of last week in bed eating take out and watching the bold type on netflix. Your allowed to have some down time. You literally can't stay positive and be ok all of the time Hugging xxx

  • Thank you! You're so right, speaking to someone who is going through the same thing does help! I've  got no experience of cancer as no one I know has ever had it so thank you, I might just message you. I hope all goes well for you tomorrow Pray I found that when I drank shitloads of water, the symptoms eased up a wee bit, plus ice lollies have been a godsend too! I've pretty much completed Netflix lol. My problem is I need to start forcing myself to get back to doing some normal things instead of sitting around worrying about everything xxxx