I never expected that

  • Chemo nearly finished

    FormerMember
    FormerMember

    I am nearly half way through my final cycle of chemo. Taking oral capecitibine twice a day until Tuesday morning next week.

    At the start of this cycle my blood counts were on the borderline (1.5 for neutrophils and 2.9 for WBC). This is the seventh of what was originally planned to be eight cycles. However, I've had delays along the way due to low blood counts so I have been reassured that I have had a good dose of chemo…

  • Sixth cycle of chemo started today

    FormerMember
    FormerMember

    Last week I picked up all my medication (capecitibine tablets) ready to start the next cycle of chemo,  but following a repeat blood test was advised not to take it because my white blood counts were too low.

    I had another repeat blood test yesterday, and after a couple of calls to the chemo suite I was given the go-ahead to proceed with this next  cycle. My bloods are still a bit borderline (WBC 2.8 instead of the prefered…

  • A year since diagnosis

    FormerMember
    FormerMember

    This time last year I had no idea what was in store for me. I only knew that I had a tumour and surgery would be required - probably with a course of radiotherapy and/or chemo.

    12 months later I've been through chemoradiotherapy (5 and a half weeks of radiotherapy with low dose chemo), a few weeks off and then major surgery (permanent colostomy and successful removal of tumour and all surrounding area), and most recently…

  • Goodbye PICC line - oral chemo only from now on

    FormerMember
    FormerMember

    I had my oncology review on Friday, and following low blood counts, there has been a change in my chemo regime. The IV drug (Oxaliplatin - nasty side effects) has been cancelled and I proceed with oral chemo only (Capecitibine - very few side effects for me). If my blood counts continue to be low then the whole lot may now be cancelled.

    But for now - after one cycle of capecitibine only - my bloods have recovered to…

  • Busy, busy but a bit in limbo

    FormerMember
    FormerMember

    I'm now officially half way through the chemo (yay!) and this most recent cycle (the fourth of eight) was by far the easiest. Not surprising really, with my white blood count being so low, I was only permitted the oral drug (capecitibine), and for me the side effects of this are minimal. 

    My next oncology appointment is on Friday and I don't really know what to expect. With my white blood count being low even after…