Busy, busy but a bit in limbo

1 minute read time.

I'm now officially half way through the chemo (yay!) and this most recent cycle (the fourth of eight) was by far the easiest. Not surprising really, with my white blood count being so low, I was only permitted the oral drug (capecitibine), and for me the side effects of this are minimal. 

My next oncology appointment is on Friday and I don't really know what to expect. With my white blood count being low even after two weeks from the end of the cycle (between cycles 3 and 4), I'm assuming a dose reduction for both Oxaliplatin and Capecitibine. But what if my counts are still low? I gather there are ways to bring white cell count back up but these have not been discussed in my case yet. Perhaps I will be given more weeks off between treatments. I don't really want delays, but on the other hand I want to follow whatever advice there is about the best course of action in my circumstances.  So, I feel a bit in limbo. I don't like not knowing whether I'll be functioning next week (in work, picking kids up from school/nursery,etc) or not.

However, in the meantime I've been feeling well and making the most of it!

A number of highlights: seeing friends in Durham; sharing Holiday School memories in York (sad in some ways as it was a memorial event, but lovely to see so many friends from HS past and present); local street party; sunshine in the garden; getting back to cycling....

I am happy to say that our street party raised in the region of £150 for Macmillan. There was a raffle, cake stall, and card stall to help cover the costs of the party with any extra left over going to Macmillan so it was great news to reach that amount. Thanks to all involved.

Here are a couple of photos. I think some people who've not seen me for a while wonder if I have lost my hair but don't like to ask. Well, as you can see from this one of me with P, that I still have it!

Anonymous
  • FormerMember
    FormerMember

    Hi Dance,

    Glad to hear you are improving and able to get around.

    Its great when you can get out and about. Keep it up.

    Love the Photos. Look after yourself.

    Take care and be safe Big Hugs Love Sarsfield.XX

  • FormerMember
    FormerMember

    hi hun what lovely pics im on oxyplatain and cacetabine as well im finding it really hard to swallow the tabs they make me gag before i even try to take them think its the smell of them its awful oxyplatain gives me numb feet hands and fingers and i feel the cold dreadfully so youre doing so well on it getting about im on my last one of 6 on the 18th may then what who knows hope you get good news when you see the onc love and hugs jen xxxxx

  • FormerMember
    FormerMember

    Hi what lovely photos' good you are making the most of you good days and fitting in all the things you enjoy, funny how we now appreciate things we took for granted before! You can have any injection to improve you white cell count, or so I've been told, good luck with your onc appt and carry on having fun! Love paulinef