Counting blessings but patience being tested

2 minute read time.

Last week I was full of the joys of Spring. Well, weren't most of us? How wonderful to be outside in shirt sleeves enjoying warmer, sunnier weather at last.

I was really counting my blessings: cycle 3 much better than the previous two (helped by stronger anti-sickness drug and lower dose of chemo), getting  some energy back, managing to get into work, remembering to water recently planted strawberry plants at the allotment, enjoying watching P and S playing outside, etc. Happy to just be getting on with life as normal really.

And in general the sunny mood has lasted into this week. A good day at work yesterday, looking forward to a night out for a colleague's leaving do at a comedy club on Friday, ballet tomorrow.

Unfortunately there was a bit of a blip in the positive attitude today when I found myself unexpectedly back over to the Oncology Suite when I'd really hoped that the district nurse visiting would be the only treatment-related activity this week.

The district nurse found that my PICC line was leaking when she came to flush it this morning. So all the things I'd hoped to get done at home today - including work - were abandoned as I set off for yet another long wait (more than 2 hours) in Northampton for it to be repaired. I knew as a walk-in extra patient I might have to wait (they were short-staffed and running late again), but that doesn't stop it feeling incredibly frustrating. I then had to have an x-ray to see if the line is still in the right position but I came home before finding out the result so have that pleasure yet to come. I had already rang nursery to book S in for an extra hour and didn't want to have to extend it further so rushed back just in time.

The census form which I had left until today was a bit depressing too. The question about rating your health in general. If it wasn't for the chemo I'd feel great, but I guess there would still be a question mark over my health until I have enough scans to give me the all clear. Plus, I don't think B has had a great day either and we miss having him here with us during the week.

BUT, I go forward into the rest of the week, still counting my blessings and maybe tomorrow will pass off without a hitch!  

Anonymous
  • FormerMember
    FormerMember

    I just wanted to say I've read through all your posts and its been a really great insight into what I am probably going to have to face.  Although I didn't have pre-op chemo, only the radiation in a fairly high dose for 5 days, I think I'll be having Chemo post-op.  No-one will say, guess its dependent on what they find in surgery.  I do know that I would want  it if there is the smallest chance anything nasty is left inside.

    I will continue to read your blogs with much interest and wish your family all the best and especially you for the great blog and hoping that you will sail through the rest of your treatment.

    Much luv

    Suetoo xxx