After that altercation with the nurse at the beginning of December, hubby realised that his not dealing with it all very well was causing me so much anxiety so he got himself together and dealt with it better which made it so much easier for us both. He said he put up a wall in his mind at the end of rt and was not thinking any further than that. That made it so much easier to deal with but now that finishes tomorrow I can see him start to worry about all sort of things again and his side effects are getting him down now too. His nose is running pink fluid constantly which is odd considdering he can't breath through it at all which makes his mouth even more sore than it would have been, you know about the mouth ulcers, but fortunatelly his skin hasn't broken yet though the swelling in his top lip and cheeks is making the mask very tight but nobody wants to make a new one at this point. He feels like he has been in a fight and just wants to sleep all the time now.
The dietician has been impressed with the fact that I have given him his Ensure or Resource drinks in a pint glass and topped it up with Whole and semi milk and water and done him a 1 pint smoothie every day with loads of stuff added. I would have thought most people did that. If he knew what I put in it he wouldn't have drunk it. Amazing what a banana can disguise !!! lol
It's been weird, the people I would have thought would be good haven't and support has come from other places.
I didn't want to go on here for quite a while as I found it dragged me back into the reality of it all and I have been too good!!! at putting it out of my mind. I ended up buying loads and loads and loads!! of vegetables and making dinners that I threw away into the garden, we have the finest looking foxes in the country. lol I kept buying bread too!! Very weird girl. I have made bread pudding but ate most of it myself as he couldn't eat it anyway. I will end up putting the weight back on that I lost at the beginning if I am not carefull.
When this is all settled he has to go back to hospital to have his nostrils opened up again. They tried it before rt but it didn't work so I am hoping that it works the next time as that is depressing him and very uncomfortable too.
As he has had to retire, he was self employed and the clients will have gone elsewhere, plus, I want him to retire especially with the sight thing, I want to take him on holidays to Scotland and Berwick on Tweed and anywhere else I can think of in this country...... just in case.
A new year with a better outlook for us all I wish.
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