So tonight was the first time I "baby sat" dad as we affectinnately call it 😊 he has had a bad day today his headaches on both temples are increasing and he's also getting visionary disturbances he describes it as blue and white. He didn't have nausea today so that was positive. I suggested to mum if it gets worse maybe look at upping his steroids. The hardest thing I'm finding is how do you cop with the person you love getting upset about dying....I get stuck for words and get upset too. I don't know how to comfort him when he says things like "I won't be here then" or "I know it won't be long" you see that pain in their eyes and to me it's unbearable sometimes I feel like swapping my brain for his and I go through this.
He has his Mri on the 20th to see if after stopping treatment it's progressed anymore. But to me the symptoms prove that it has.
Thank you to every one who said make the most of him as I really needed to hear that. Even though it hurts to see him I enjoy every minute I have with my wonderful dad, and in a way I'm learning more about him and spending more time with him than I ever probably would have before this happened.
I hope you are all going ok what a hard road this is.
Emotionaly and physically exhausted but filled with love for my daddy.
Hannah
