I tried to come on yesterday to update, but I just couldn't manage it.
As you know, I was refused funding by my local PCT earlier this year for CHT-25 treatment down at the Royal Free in London.
People rallied round and raised enough money to send me at the end of June.
I
had a scan after 4 weeks which showed great signs - neck was no longer
active, under arm shrank by 2cm, chest mass shrank by half.
I had
a scan last week (about 13 weeks post treatment), which unfortunately
shows that all my nodes are very active - moreso than before I had the
treatment, they have also all started to grow again, especially the one under my arm.
Im devastated to say the least.
I start ESHAP chemo in 2 weeks, hoping to go onto an allogenig stem cell transplant afterwards.
The first ESHAP will be given at 75%, as i've still not fully recovered from the last treatment. Hopefully the second will be given at 100% - depending how I react to the first.
