Hello
I joined this site only last month after the devastating news that my husband has been diagnosed with pancreatic cancer with secondaries to liver. It was discovered due to him goin to A&E at my insistance following few weeks of crippling stomach pains and being treated for constipation by GP.
He was admitted to hospital as they discovered he has a lot of fluid around his lung.
Finally has CT scan on 21.10.08 after having lung drained and sent home same day with devasting news.
We sat around for a full week not quite knowing what to do and after phone call to GP(who had not been informed of his diagnosis), we were assured he would be referred for oncology appointment asap.
First we were told to attend appointment with pancreatic surgeon which came through on 05.11.08. Didn't see consultant, just registrar who bluntly told us we were looking at months to live. Gutted.
Hosp next day to have lung drained again. They made a mess of it and didn't successfully clear the fluid, then discharged hubby next day.
He never had another peaceful day, due to breathing difficulties, reliance on oxygen 24/7, and the stress of knowing no-one could help him.
Appointment for oncologist came through for 20.11.08.
Sadly, my darling husband, best friend and soulmate passed away in the early hours of 19.11.08, never having been offered a kind word or any positivity. Not a lot of faith left in NHS or God at the minute.
FormerMember
I am so sad to read your story,. you poor darling.
You know it makes me so angry too, you both did not deserve such insensitive treatment.
I don't know what to say, I will be thinking of you today, my heart is with you x
You have done your very best all the time, and will have therefore been with him through all of this, which means his burden was shared. It leaves you completely knocked for six now but please feel that lots of people on this site are thinking about you and hoping you are doing as ok as anyone else ever could. Shock is a horrible thing, I really mean that.
Just remember how he truly was your darling, - you are privileged and pained by the loss at the same time. Hang on to it forever and remember that he would have wanted more than anything else for you to carry on with your life as you should.
I have just read your blog about your dear husband & memories have come flooding back. My dear stepfather died of pancreatic cancer in July of this year. He was a healthy working man until May when, He went to the doctors beacause he wasnt feeling well.
The Doc prescribed Gaviscon because he was suffeing with awful indigestion & Diahorrea. It didnt improve so the following week he went back again & was prescribed Omoprezole.
Another week went by & he was feeling quite poorly so again went to his G.P. This time they took some blood samples.
another week went by (by which time he couldnt work, or sleep in his bed ,but had to stay upright) . The blood samples came back & his G.P phoned and asked him to go immediatly to the surgery. He was told there that he was booked to go into hospital the next day as his blood tests showed some abnormal cells.
It was diagnosed as Pancreatic Cancer & medication was prescribed & he was allowed to come home. From there things just got worse.My mum & my sister nursed him day & night (calling out the GP at least once a night for morphine). We finally got a mac nurse who was very helpful But sadly to late. He was taken into a local Hospice where he died 2 days later. All this inside 6 weeks. It all came as such a shock & like you we recieved very little information or sympathy from his GP. My mother (80) has still not got over the shock of it but has since changed her GP. Please accept my sincere sympathy & God bless You & your family. Pancreatic Cancer is such a horrible disease as is any cancer ( I Have lung cancer) .Its the suddeness of it that floored us. It all happened so qulckly. Time is a great healer although he is always in our thoughts as will your dear husband. Love Lyn. xxx
wow what can i say come on line we all here for chat if you need us . we not like the nhs most on here know more them them . there a lot of nice lady and men on here that helped me on my cancer road and still on it now . i life is better thanks to this chat room love we here when you need up may be not today but we here love . if you need to chat to just 1 then lese fill free to . thinking of you as this very sad and empty time . love to all xxxx jillyann xxxxxx
Oh you poor thing. What a terrible time you've had (and your lovely husband but he's at peace now). You must be still in shock. You won't feel like it yet but I think you should do some very strong complaining to the appropriate authorities in order that this dreadful sort of thing does not happen again.
In the meantime, I share some of your sadness and I'm sending you loving thoughts, as everyone else here is doing. I hope you can take some strength from the support of the people on this site.
Thank you for being brave enough to share this with us.
