The finer details...

1 minute read time.

Thank you so much everyone that answered yesterday. I was having a wobble and you really touched me xx

After my hurried explanation I thought that I had better fill in some of the finer details.

So Dave has a Grade III Astrocytoma on the rear right hand side of the brain. It is/was roughly the size of the palm of your hand and was too deep to be operated on. He had a grading scan but it could not be used for diagnostic purposes so he had to have a biopsy to grade the tumour.

TBH it has all been a bit of a roller coaster!

The brain surgeon originally said he had 5 years. He is only 39. Then after there was no clear result from the first biopsy he said that maybe the scan was wrong and it was low-grade - so hopes were risen. After the second he confirmed out worst fears and told us it was high-grade after all....

Then we meet the oncologist. He is the strangest man I have ever met but is cutting edge.

He wanted to treat Dave aggressively to (and we could hardly believe what he was saying) maybe even cure him!

But after this initial treatment (Chemo & Radio) he is going to have a scan to confirm if it has been successful in reducing the tumour.

If so Dave is going to under go upto a years worth of Chemotherapy (1 week in 4)...

And thats where we are now.

AnneMarie (Mrs Dave ;o) )

Anonymous
  • FormerMember
    FormerMember

    Hi AnneMarie, I will keep fingers, legs, toes and eyes crossed that all is well with Dave's scan and he gets the go-ahead for further treatment. A year sounds like a long time, but I'm sure it will all be worth it in the end.

    Wishing you both all the very best.

    Christine xx

  • FormerMember
    FormerMember

    All the best for the future for you both. I hope you get good news from the scan results. Keep strong and take care X

  • FormerMember
    FormerMember

    Hi AnneMarie,

    You both have a long road ahead of you. All the best with Daves scan. Look after yourself.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Glad you're not wobbling anymore Mrs Dave!  

    I was 2 years older than Dave when I had a total gross resection (just means they cut out everything that was shown on the MRI) and followed this with 33 sessions of RT - pictures of my mask and me in it on my profile if you're nosey - had a six week break and then 6 cycles (6 months) of Temozolomide (TMZ) which I finished in Dec 09.

    The oral chemo is much much easier on us, I hardly had any nausea at all, but be warned about constipation - boy oh boy that made me feel so ill, sometimes I wouldn't go for upto 10 days despite all the fresh veg n fruit, licorice, senna tablets & the nasty lactoluse solution.  I hope Dave has a stronger constitution than me obviously LOL

    Good luck along your journey and feel free to add me as a friend on here, if I can help or answer any questions I will, don't be afraid to ask :)

    Love n strength,  Debs xx