Watching someone fade before your eyes

2 minute read time.

This is mostly about my experience of seeing my husband of nearly 50 years who was a big active man start to diminish because of bowel cancer. 

We were so thankful when he had a life-threatening bowel obstruction operated on under emergency conditions even though were were in North Cyprus on holiday at the time.  The obstrution (2 cancerous tumours) was removed plus 13 lymph nodes, with a bowel resection.  Fortunately he didn't need a colostomy bag as the obstruction was higher up in the bowel.

He seemed to recover well after the surgery - remarkably so as he had an abdominal aortic aneurism repaired using the same incision as the bowel surgery.  We managed to get home OK - with help from both lovely sons.

Keith saw an oncologist last week, and was told he needed 6-8 weeks wait after 2 big ops before starting chemo.  Also Dr Last says he is not fit enough for chemo yet.  He needs to build up his strength and stamina, so high energy/high protein drinks have been prescribed.

But he is so tired, has real difficulty in eating much - and then only small portions.  He finds the drinks rather unpleasant and has only manage one a day so far when he should be having two!.  He has discomfort in his upper abdomen most of the time, which gets relieved a bit if he manages to go to the loo.  He spends most of his time sitting in the chair or lying on the bed - which is his most comfortable position.

Also Dr Last is not quite sure yet exactly what type of cancer Keith has.  The doctor has had to work with reports translated from Turkish, and with tissue samples which we brought home with us.  I'm hoping one of his team may have managed to speak to the surgeon who performed the op on the bowel as that very kind man (who speaks excellent English) gave us his mobile phone number which I have now passed on to Dr Last's team.  We don't have any of the scan results taken prior to the op - these are in Cyprus.  We don't know if the canceer has spread elsewhere, but Dr Last suspects it may have done, as he told us that if it has spread there is no sure cure.

Keith vomited twice yesterday - a bad sign I think.  He left a message for his assigned nurse to call back, as we don't quite know what to do next.  Our GP has not been the most helpful of people as yet, so we don't want to approach him unnecessarily.  Keith has a furthe appointment with DR Last in 2 weeks, and he is waiting for an appointment for a full body scan which we assume will happen before he sees Dr Last.

Thank God for supportive family and friends.  But this is one way I can say things to ease some of the tension which really comes from not knowing what to expect.

Anonymous
  • hi, Just wanted to say sorry that you have all this to go through. I know there is a feeling of urgency to get the treatment plan going and it does help, but it is best to start chemo from a stronger position. My mum went straight to chemo first as she had a spread to her liver, then surgery. During surgery and chemo she lost so much weight and strength, then one day I went to visit and she was waiting for me with her coat on , ready to hit the coffee shop! She had suddenly felt stronger and more able.                

    I think its great the love and care you have for each other. The waiting is hard but somehow we keep enduring.  

    I hope you get good support from your oncology team if your gp is not working out.

    Kind regards court

  • It is always difficult to encourage someone to eat when they feel unwell. I have helped a number of relatives in a similar position and found ' little and often' was the best way to encourage them to eat. Also servings of softish food went down well: scrambled eggs, soups, rice pudding, yogurts, etc.

    Hope you get your husband's medical treatment sorted out soon

    Best wishes,

    KateG

  • FormerMember
    FormerMember

    Hi Helen, I wondered if your husband was on steroids?  The reason I ask is that my dad was in a very similar position earlier this year (unfortunately he passed away after the tumour perforated his bowel) and he had lost his appetite completely and could only manage a very small amount of the shakes.  He was put on steroids and his appetite came back with a vengeance.  He put on half a stone in a month.  It is certainly something worth asking about if your husband isn't already on them.

    I hope this helps in some small way.  Best wishes to you and your family.

    Christinexx

  • FormerMember
    FormerMember

    Hi - I am so sorry to hear of this, it must have been a terrible shock to you both - a bolt out of the blue, you are suddenly sweapt onto the roller-coaster ride.

    It's great to hear that the Cypriot hospital/specialist has been so supportive and hopefully can provide all the information they have for you.

    Remember Keith has had pretty major surgery, which in itself takes time to recover from.  I remember mum coming home from hospital xmas eve and exactly how unwell she was...

    One day at a time now, there is a lot of definite information still to find out and everyone is different - thankfully :)

    Little and often food wise is good, mum's dietician advised us 'don't worry about if it's healthy food - just have food!' I guess if he feels like eating it and it's loaded with calories it really doesn't matter it's all fuel :)

    Don't put off seeing the GP - it's his job!!! If you are not happy with his advise you can ask for a second opinion, it's time to be assertive and get exactly what is required medically.

    Just prior to mum having chemo she had two weeks of either being sick, having upset stomach or constipation, it went in circles and circles, our GP reminded us not to underestimate the power of stress - he made us take a step back, liquid diet for a day (which included clear soup), then the next day introduced rice, banana, toast and apple sauce, and then introduce chicken and other plain foods until the stomach has settled into eating again....I now wonder if actually focusing on a set 'diet' plan instead of focusing on the chemo to come, got mum back onto eating normally again!

    There are a lot of natural ways to assist with toiletries, we have found that good old fashioned prunes work wonders (too much info probably - lol)

    Mum's cancer is totally different but the chemo and other medication has provided an assortment of hurdles to overcome - she has done incredibly well :)

    I didn't set off with the intention of writing you an 'essay' and I hope that you find something of use to you from this.......

    Huge huggs to you, it's a tough road to travel but you will find lots of support and friendship here to see you both through... I wish you both well and feel free to pm me if you want/need to :)

    xxxx

  • FormerMember
    FormerMember

    My husband was diagnosed in Mar 2006 and given 6- 9 months survival time.  The disease finally won in Oct 2009 after 3 additional years. The only way i could cope was by thinking that every day he was with me was a day I didn't have to live without him.. It helped me I hope it does you.  It does not stop the eventual pain of loss but I know we tried to enjoy every "bonus " day until the very end, and we had some very happy times.