Emotions about terminal cancer

2 minute read time.

It is a release to be able to put into writing what has been happening recently.

Keith had his scan 2 weeks ago, and has been in a lot more pain since then.  We had to call out the duty doctor last week on Friday night because his pain control medication was not adequate. I felt so helpless not being able to do anything except be there for him. He was admitted to hospital and as he hadn't been able to eat they put him on a hydrating drip, then a catheter.

All sorts of pain relievers were given, then thankfully he was moved onto the oncology ward on Monday evening.  They have a really good pain mangement team, so he is able to have something stronger than morphine every 12 hours.

We saw Dr Last for the scan results in the ward quiet room yesterday afternoon.  We had been prepared for bad news by all sorts of remarks made by various staff, also the fact that his assigned colorectal nurse was swapped for a gastric-type nurse but we had not been given any formal information.

We learned that the 2 tumours removed from his small & large bowel were in fact secondaries - everything started in his stomach.  He needs building up in strength before they will consider chemo (a 9 week course.) but they are giving him steroids to help with appetite etc.

We understand that this is terminal, and that the chemo may not work.  All I want is for him not to suffer pain - so to my reilef they are going to ensure he is on the right cocktail of pain relief before he comes home - and  brilliantly he will be referred for a Macmillan nurse to oversee things at home.

Although in my heart I knew things were bad I can't seem to stop crying at nothing now - I don't even know what sets me off.  Our 2 sons have been wonderful, but both live in the south & we are in North Yorkshire.  Friends here have been so kind and supportive - everyone at our church is praying for us to have strength & peace, and there have been so many offers of help it has been quite ovewhelming.

One good thing - I have had almost 50 years of married life with Keith - not all roses - he is such a stubborn man! but I love him to bits.  So many of our early friends were divorced or separated & I know we are fortunate in still being together after all this time.

After the consultation with Dr Last yesteray we had half an hour to ourselves in the quiet room and were able to have a bit of a chat, a bit of a weep. and were comforted to be able to pray together and remember the promises from the Bible in Psalm 16 - anyone who is (or isn't) a Christian believer can look it up - it is so helpful to know that whatever happens we remain in God's hands.

Thats it for now - Helen

Anonymous
  • FormerMember
    FormerMember

    Hi Helen,

    My heart,thoughts,strength and Love go out to you both. At this time,what a fantastic life you have had together almost 50yrs of marriage.and two loving sons.We men are all the same we can be stubborn,and childish at times but you and Keith have held it all together. Having a Mac Nurse will help a lot. Hope you both have a lovely Golden anniversary when it comes.

    Myself and my wife are only amateurs we have will been married 40 yrs in Augs.

    So take care and be safe Big Hugs.Love Sarsfield and Mrs S.XXXX

  • FormerMember
    FormerMember

    Hello Helen,

     

    I have just joined and feel the same for my mum ( terminal) she had bowel cancer also secondaries. she is now at home pain free at the moment fingers crossed,It is so isolating, confusing, and frightening I am never sure what I will be faced with on my next visit which is every day as live only 5 mins away, it is a plethera of GP's District Nurses, Emergency Gp's Physio,s Carers Social Services   and the hardest of all is to keep the fact that this is terminal away from mum as she has alsways stated to me and thankfully her GP that she DOES NOT WANT TO KNOW IF SHE IS TERMINAL. so I have chatted to all concerned and have asked that her wishes are adhered to, (which in itself is difficult) 

     

    I find it hard to post as my mum is 90 in May, so we have many good years together, but have not read any similar posts so far but am  a newbie.