So we had an appt with what we hope to be our new primary care physician (a requirement of insurance in the states in order to have "managed" healthcare). He is in our new town and we needed to have someone to look after Dave when we got home, be willing to reorder the labs that the LIttle Rock, Ark docs want done, work with LIttle Rock Docs and be the frontman for managing Dave's health at home, all other health issues he may have, as well as be willing to be a part of a team in his care of the Myeloma. He is young and new to the practice and went really, really well. We are so happy.
Dave continues to improve, although he has been having some emotional moments the last few days. As a caregiver, I get frightened when I "feel" he isn't "in the fight". It makes me a little crazy. So between being understanding and supportive and non judgmental, I fight the urge to SCREAM because I feel sometimes I'm the only one in this fight, and its not my battle. I'm a supporting character, sometimes without notice, being thrust into the lead role, and either I'm not prepared or I'm just plain tired. Oh the DANCE we all do as patients and caregivers. We have to find our steps. Sometimes I feel like Ginger Rogers and Fred Astaire and sometimes I feel like the characters in Animal House!
BUT, we are getting through, the good days and bad, good hours and bad, good minutes and bad. Somehow, someway, we are managing to walk through the prickly thorns looking for the meadow filled with flowers and rainbows. Best, Lori
