Round 5 done.No problems. Dad did really well thorugh this one. Tired, yes, but otherwise good.
He's got really bad fluid retention though. His poor little sparrow legs are tight and his feet are very puffed up. Velcro shoes and sports socks are helping. The consultant thinks that this is steroid related so we're trying to bring them back down from 4mg to 2mg.
He's been on 2mg since Tuesday and so far I think he's ok off it. Took a tumble in the back yard yesterday, but I do think this was a genuine trip and didn't seem to do any lasting damage. Also gave us a great game of hide and seek with his glasses which fell off.
So fingers crossed, we've got it licked this time. One more treatment to go, then wait for a scan and a progress report. No more seizures to date.
I'm up and down still, but not beating myself up. Also trying not to kill people on a regular basis. You feel like the world should stop and stand still thought this don't you? But it still turns and largely ignores the individual :)
I get most annoyed with people who are supposed to be his friends and our family. You know I don't think any of them have googled 'brain tumour' cause not one of them asks me what sort he has. And they all say 'don't worry he'll get better you'll see'. I don't correct them. I did try to gently say that this wasn't going to have a good ending right at the start, and everyone just wanted to be positive and I suspect thought that I was thinking the worst. *chuckle* I just leave them to their happy thoughts, no point everyone spending an indeterminate time worrying.
So, thats me for the night, I'm off to bed. Night night! X
