We were still in shock having left the hospital with very little information to go on but after googling the various brain tumour types and treatments, a low-grade glioma didn’t seem like the worst possible diagnosis, the average survival duration seemed to be in the 10+ years, which while not great wasn’t terrible, all things considered. It was likely to require surgery to treat which seemed quite daunting, but the location seemed to the biggest issue, being in an eloquent area indicated that it would make it harder to treat. However, I went back to work full time and carried on as normal but noticed an increase in the frequency in the seizures (generally 1-2 a day!) and a slow deterioration in my general physical condition.
After a two and half week wait I finally got a consultant appointment booked with Kings College Hospital for the end of September, my symptoms continued to worsen though, and I also developed a slight limp in my right leg which wasn’t a good sign at all.
At the consultant meeting I was put in for an immediate MRI as the consultant was very concerned that the twitching and numbness hadn't improved on the Keppra, and he put me up to full 3,000mg maximum daily dose of Keppra and 4mg of dexamethasone steroids to combat the seizures.
