January 2020

Less than one minute read time.

Radiotherapy finished New Years Eve as planned, in the first few weeks of January other than an increase in swelling (which felt like my head was rather full, similar to suffering with a bad bout of hay fever) generally coped ok with the end of the treatment. Did also require an afternoon nap most days to get through to the evening though.

Signed up to and was accepted onto an Immunotherapy trial and had my first dose start of January. Unlike the chemotherapy this was done intravenously and required to go into the chemotherapy unit and sit in the chair and have the infusion over a couple of hours. Some mild aches and pains but no other notable side effects. Will be due 3 more doses on 3 weekly intervals.

Details of the trial here –

https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-of-ipilimumab-and-temozolomide-for-people-with-glioblastoma-ipi-glio

Having lots of time to myself is now the main challenge and keeping busy with other things now that I’m not up the hospital every day. At least by the end of the month most of my taste for food had returned which was a nice bonus but still very bald!

Anonymous