Saw ONC and NEURO SURG today finally

Less than one minute read time.
HI Allison and Jolls and all you other amazing people. Promised i would let you know how i got on in Hobart..... My tumour hasn't shrunk but hasn't grown either again. So they are now going to liase with a special Radiologist at Prince of Wales Hospital in Sydney Australia, to see what he reccomends? I am very dibilitated in what i can and can't do so i think they are trying to give me a better chance at a bit more quality. Today was the first time i actually saw the word MALIGNANT written on one of my reports that was a kick in the guts! I am still to continue with my chemo although she said she may change my dosage due to the loss of muscle mass i have. She has also put me back on DEX for a period to see if it helps with my lack of mobility and eating probs. Could have been worse i guess, at least they are still finding avenues to go down. All the Best to all you extraordinary people on What Now. LOVE FRECKLES XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXxx
Anonymous