Horrendous Morning. Horrendous.

5 minute read time.

It started last night. My hair started to come out. I know I'm usually very descriptive, but not about this bit. So we'll just say 'body' hair. My hair has always been extremely precious and I suddenly find myself incredibly shy about the whole subject. It came completely out of the blue. Body hair coming out before head hair. Totally unexpected. It hadn't occurred to me that it would happen in that order. Tried to tell myself that it's ok. I haven't really got an issue with my body hair coming out. So I tried to tell myself that I could therefore cope with it. It worked for about 10 seconds. It's not the body hair. It's what it leads to. What it means. It means that the hair on my head will be next. I burst into tears. Started panicking. I just kept thinking about my head hair. It will follow. Soon. 

I have been told that just before the hair falls out, the scalp goes all 'tingly'. So far, my head has been 'itchy' but not tingly. Until yesterday afternoon. Weird sensation all over my head. The slightest touch, or 'stroke' causes a kind of 'prickly' feeling. Imagine a cat's fur up on end. It's the most bizarre feeling. Just more corroboration that it's going to fall out.

All evening, I'm terribly upset. Usually I can keep it in, when my kids are around. But last night, I was inconsolable. Boyfriend's arm around me. My head buried into his neck. Sobbing. My kids saw. I'm not proud of this. I'm mortified actually. As far as they're concerned, I've been 'sailing' through this pretty well. But last night. I just couldn't hold it in. Everything I've done to prepare for this particular side effect seems to be valueless right now.

I've had my hair cut from half way down my back to a short back and sides with a longish, floppy fringe thing. This I did to prepare. I bought a wig. To prepare.  Ordered headscarves, which arrived this week. All to prepare. It doesn't matter though. None of it matters. None of it means I can escape finding hair on my pillow in the morning, or finding handfuls of it wrapped in my fingers. So now my 'short' haircut, is suddenly too long. I can run my fingers through the my hair. That means it's too long. "Why don't I shave it for you?" suggests my boyfriend. "NO" I yell before he's even finished the sentence. "NO. I can't cope with that". More crying. Thinking.

May be I could go really short. Not shave it, but like a Grade 4 or something...

"May be I could do a Grade 4 on the clippers" I repeat out loud. "OK" he said. "MAYBE" I said.

Need to think about this more. Can't decide. Can't decide. Don't know if I'm brave enough. 

Woke up this morning. Head feeling very 'prickly' still. Had slept in a head scarf just in case it started. Had to put the wig on to take the kids to school. Worried about taking the scarf off. Pulled it off. No hair in the scarf.

Phew! A few more hours to decide what to do.

Get home. Wig off. Looking at my hair. Right. Going to put a scarf on for the rest of the day. Let the boyfriend deal with it tonight. Scarf on. Looks OK. 

Now, if any hair falls out, I won't have to deal with it.

Well, another thought of mine which worked for about 10 seconds. My head is so 'prickly' that it's impossible to 'escape' thinking about the inevitable. Burying my head in the headscarf wasn't working. Burst into tears. More panic. Phoned my boyfriend. He was perfect. Understanding. Supportive. But I was too far gone. Pacing up and down. I realise I have a massive headache. Phoned a friend who's been through this. She said she wore a 'wig cap' during her 'fallout'. It's something that goes under the wig. It's like a stocking. But strong and tight to the head. It 'catches' the misery that is happening and then you can tip it into the loo to empty it. When I got my wig, I remember getting a wig cap. Searching the house. Can't find it anywhere. Losing my mind now. Had a thought. My aunt's a hairdresser. Where's the phone.

"Hello?" she answered. "I need your help" I managed. My sobbing was relentless. I explained what I needed. "Don't worry" she said "I'll call the guy and get a couple in for this afternoon" she said.  Head still banging. It's 11.30am. Need to kill some time. Need to stop crying. Bed.

2.30pm. Arrive at my Aunt's. Crying as I walk through the door. Big hug offered and gladly taken. Wig caps on the table. Still crying though. Trying to explain that I can't deal with handfuls of hair. Telling her that I know I need to cut it or something but that I'm not sure if I'm brave enough. "Come on" she said. Through to her 'salon' room. "Ok" I said. "Let's try a grade 4" I suggested.

Fuck it. Nothing could be worse than essentially having been hysterical all morning.

"But away from the mirror" I demanded. The result of this hair cut was one I did not want to see. Cut finished. Leant back a little to see the back of my head in the mirror. It was AWFUL. I recoiled. Put my hands on my head reluctantly. Mmm. Short. Like my boyfriend's. Ok. Try the mirror again. This time straight on. Not pretty. Look like my brother now. Getting used to the idea of this all now.

If I'm gonna do it, I may as well do it...

"Let's try a grade 3" I said.  Grade 3 done. Another look. "OK, let's go to grade 2" I continued. Grade 2 done. Not much difference really. "Let's leave it at a grade 2" suggested my aunt. "OK" I agreed.

In her kitchen. Having a cup of tea. Shoulders started to relax. Feeling a lot calmer. Like a big burden has been lifted off. Put my wig back on. Chin wagged for a bit. Then felt like I was ready to go home. Big hug. Lots of thanks. Drove home. Feeling completely different to my journey there. Not sad anymore.

Got home. Itchy from all the hair in my clothes. Hot bath. Nice. After, I watched the water drain down the plug hole. Very small bits of hair left in the bath. Showered round the bath. All gone. Easy.

Ok, now I know what it will look like when it starts to fall out. I can cope with that. It will all just slide down the plug hole. No blockages. It will just disappear.

Wig cap on. Head scarf on. That's how it will be from now on. Cap and scarf on round the house. Cap and wig on in out in public. Job done.

What a journey though...

Anonymous
  • FormerMember
    FormerMember

    It IS very creepy to have your hair come out.  It is different for different people.  I looked quite mishapen in the head!  At least to me!  But I learned how to knit hats for myself...so there <tongue sticking out> you dirty pig of a cancer.  And now that my hair is about one inch long I like it!!  Who'd a thunk it??  And no finding hairs anywhere on clothes, in house, etc...!  And I am one of those sorts that I no longer cover my hair...I use it like a billboard for cancer DEFIANCE and awareness (gives me a chance to talk about early detection of ovarian cancer).  And it is so nice that scarves are so fashionable now so we kinda blend in.  Did you get a wig that is very different from your usual way of wearing your hair?  And by the way...I cut my own hair when I WANTED to...like you.  We're with you...xx

  • FormerMember
    FormerMember

    forever

    your blog touched me deeply I have full admiration for you. you brave girl....well done

    (((((((((((((((((((((((hug)))))))))))))))))))))))

    love

    J x

  • FormerMember
    FormerMember

    I watched my younger sister goes through the whole trauma of hair loss when she had chemo for breast cancer.  I was more upset than she was.  Now three years on, she has just been given the all clear at her annual check up, and, she says, the misery of hair loss feels like a bad dream.  Good on you for taking such a brave step.

  • FormerMember
    FormerMember

    Awwww poor you. Like you I was shocked when my "intimate" hair came out. I remember thinking it was a spider in my shower puff thingy and then going into meltdown on the bathroom floor when I realised what it was.  Not that anyone was going to see or know, but like you say....it was what it stood for.  Losing your hair is one of the worst aspects of the whole rotten game because it is there (or rather not!!) every time you look in the mirror.....

    I know it is no good me saying you get thro it.....I hated it when people said that to me but like Daffie says,,,,,just over a year after treatment finished my balding pate and no eyelash and eyebrow "I'm an alien" self seems like a bad dream.

    Lots of love

    Diane

  • FormerMember
    FormerMember

    Oh Monna, it took me right back to when mine fell out.  Only mine was due to radiotherapy to head.  I only lost from the crown of your head at the back and all the top, from just above the ears and across.  I looked like Andy from Little Britain crossed with Max Wall.

    Now the R/Therapists told me to shave it all off but I never did, because I can put a hat on and my hair at the back shows underneath and no-one knows I have nowt on top.

    It was by far the most distressing time, not only was I semi-bald I could see the brain surgery scar and dip on my skull.....all too real.  Its gradually growing back but at the front on the right (which took the full force of zapping), its very very sparse....you can see the scalp so I will definately always need a combover :(

    I have a friend who lost hers last Christmas and she is now sporting a beautiful shoulder length bob....and looks fab.

    I am still full of admiration for you and still part of that "cyber army" ;)

    Love & Strength

    Debs xx