Hi everyone new to this site really strugling with the above as anyone had funding form there gp for the lymphodema massage? also has anyone been to breast cancer haven in fulham broadway l am going to the introduction day. enidwallis
FormerMember
Hi Enid,
I get Lymphoedema and Cellulitis badly, and have been hospitalised because of it as a result of Breast Cancer Surgery.
I was seen by one of the Breast Care Nurses, who specialises in Lymphoedema care, and shown how to do SLD (Simple Lymph Drainage) I was also prescribed with a compression sleeve and some special gloves.
My PCT to provide MLD ( Manual Lymph Drainage) on the NHS, so I have to pay for this ( thanksfully for now I am able to) privately at a BMI private Hospital. I also had to pay for the special compression bodice/bra gadgets I wear as I not only get it in my hand and arm, it effects my breast and back too. (£87.50 each!)
I have been on antibiotics, sometimes 2 or 3 at a time since October last year, so can fully sympathise with how badly this can affect normal life and mobility.
If you are able to access MLD through the NHS, grab it with both hands, it has made a huge difference to me, and my arms etc are looking almost normal.
I put my sleeve on about 7am and i always wear it everyday. I usually take it off about 5/6pm .I dont do any work in evenings so i feel it's o.k to not wear it then
