Big Day Tomorrow

Less than one minute read time.

FormerMember

27 Jul 2010

My mum's first consultation with an oncologist that specializes in her kind of cancer is tomorrow. Mum has a rare cancer called Pseudomyxoma peritonei so rare in fact that your chances of getting it are 1 in 1,000,000. Problem is because its so rare there are only 2 hospitals in the UK that can deal with mum one in Manchester and one in Basingstoke so our closest is Basingstoke about 55 miles away. She wants me to go with her and its silly but I am catching myself trying to gain power over something I really have no power over. Her cancer caught me off guard as it does anyone and I found myself listing hundreds of questions to ask the oncologist tomorrow, as if the answers to these will somehow help me control this situation. I doubt I'll sleep tonight my heart is pounding in my throat but my bag is packed notepad and pen included. Tomorrow is the day some stranger will tell me how long I'm allowed to keep my mum for.

FormerMember over 14 years ago

Hi Elise,

I know its all very scary but you are doing a really amazing and brave thing for your mum. I just wanted to ask you and I'm sorry if it sounds a bit insensitive but do you know if this cancer is sometimes called jelly belly because of the mucus it produces being like jelly? Its just I met a lovely lady at a celebrating life day who had what sounds like this cancer ( i googled the name). I remember her describing her treatment and surgery etc and thinking what an amazing story it was and that I'd never heard anything like it. I am pretty sure she had it a good few years ago and was still doing really well. So just remember that although everything is uncertain now there are positive stories and hope even in rare cases. All the best and let us know how it goes..were here for you xx
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