Is there anyone out there?

1 minute read time.

Hi I'm kinda new to this so here goes.  My name is Donald, I'm married and have two teenage kids. A non-smoker and very moderate drinker.  I've been battling tongue and mouth cancer on and off for about 20 years and have lost count of the number of operations I've had done. Up to now most have been conservative as the team of doctors have tried to be as conservative as possible to preserve my quality of life. Up to last year that is. The cancer for no particular reason spread rapidly and I had a large part of the middle of my tongue removed but got through it without my speech or eating being too effected.  I then had 35 fractions of Radiotherapy which left me with the inevitable dry mouth but I thought myself that I could live with that.  Unfortunately,  the cancer has now shown up in my neck area and I've just finished 2 sessions of hellish chemo.  This are now putting this on hold because they have discovered they can give me Radiotherapy as it's not in the same area as before.  So here we go again for 35 fractions.  After that??? Maybe more chemo but most likely a pretty invasive operation which will leave me with talking, eating, saliva, swallowing, etc issues.  I'm looking for people who can help me get through this and anyone who may be looking for more infomation on my story if they think it would help. 

Thanks for taking the time for reading this and hope to be in touch soon.

Regards Donald

Anonymous
  • FormerMember
    FormerMember

    Hi Duckie

    I didn't have the same cancer as you but just wanted to welcome you to Macland. I hope you get as much out of this website as I did when I was going through my surgery and treatment. There are some lovely people on here who will support you and give advice. I'm sure that someone will be in touch who has had similar problems that you may encounter if you have this op.

    Take care

    Angela x

  • FormerMember
    FormerMember

    hi,

    You have certainly been through a lot.  I hope your treatment is successful and your cancer never returns.  

    Hope your operation goes well and you can overcome any issues resulting from it.

    Take care, and best wishes x

  • FormerMember
    FormerMember

    Hi Ya Donald,

    I have had 4 different kinds of Cancer all around the neck area,Larynx,oesophagus,thyroid and lynphnodes.

    It has its fall backs I cant Talk,Taste, or Smell.

    but I can type. well with 2 fingers anyway. Its good to have you on the site. Good Luck see you around..

    Take care and be safe Sarsfield.

  • FormerMember
    FormerMember

    Welcome to the site, I am sure Shezbert would be able to help - at least a little, her husband had cancer in this area and she is pretty clued up.  Hopefully she will sign in and see this.  There are open forums for the different types of cancers, have you tried looking for one as close to yours as possible and posting there?  Might be some others lurking around waiting to help or find someone else with the same problem to share.

    Good luck with getting answers, otherwise the rest of us are a supportive bunch, we have all come together as mates even though we all have very different cancers....that doesn't stop us from caring, listening, supporting and laughing together.

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    as with everyone else ... different cancer for me but, just wanted to say welcome, hope you find some comfort here even sume laughs and definately friends

    liz xxxxx