My husband had the whipples op New Years eve 2008, followed by chemo, 6 mnths worth and then they decided to give hime radiotherapy. He was supposed to have 5 wks of this but was in so much pain after just 2 lots that they stopped this after his 5th amount, but he also ended up in hospital for 9days in such terrible pain and was very unwell. They put him on morphine patches to help deal with the pain when he came home and also oxycon for back up. He did not last very long at home because he was re-admitted to hospital nearly 5wks ago in excruitiating pain in his back and they do not seem to be getting this sorted out. He has had a block injected of chemicals into his back but this is not working, also on a diamorphine syringe driver the highest they can afford for him to have and back up of diamorphine injections every 2 hrs if needed. He has lost so much weight there is nothing of him. They have now decided to send him to St. Thomas' hospital for a PET scan. They say it could be trapped nerves after the whipple op, but we feel they have perhaps given him to much radiotherapy, more than they should have in such a little space of time. Has anybody else experienced this or similar.. I feel absolutely helpless and feel like I am watching my husband die slowly and painfully, I am at my wits end. Could somebody please give me a little advise, anything. thank-you.
