My Bobbie, he seems to be getting worse. Was looking so well and feeling it when we went to Greece [on our surprise holiday]. He started radiotherapy had 7 lots and was getting more ill by the day. He kept telling them it was so painful, but they kept sending him back for more. Well he ended up in hospital, for 2 wks, after he could not take any more has lost another 2st in just a few wks, did not have it to lose. They have now stopped all treatment, one doctor has said they have given him too strong radiotherapy and this is what has caused him to become so unwell and in pain, more distressing to watch him in this pain than after his whipple op. They have now sent him home, after getting pain under control and building him up a little. Gave him bone scan and ct scan but these have come back inconclusive, so they want to give him mri scan. I feel though that I am having to fight to get things done, first of all they said he could have one end Nov. but now after loads of phone calls they have brought it forward to 12th Nov. I just cannot sit back and watch him so ill and feel they are not doing anything to help, after we feel that they have caused this by giving him too strong a dose of radiotherapy, who do you trust. Your hands are tied though because you need help, I am so confused, the eldset children are so angry about all this and I am trying to keep them calm about things, but also my main concern is my Bobbie, cannot bear so see the suffering he is going through and I am the one who has encouraged him to have the treatment. feel so so guilty. Sorry to everybody who reads this because I am ranting on and feel so angry myself inside and ready to explode. They have just sent us home to wait, well I am sorry but I will not wait and watch somebody suffer like this.
