Been a long time

Less than one minute read time.

Hi all its been ages since i was last on but now feel i need to write again.

My cancer is taking over my life and I dont want it to my lovely wife is so supportive but i dont want her worying all the time about me. We have been through so much and still fighting. I am now paying for private treatment of Avastin which PCT have refused to fund is anyone else out ther in similsr position? My friends and familly have been amazing raising the money for me which is nearly £3K a month but its keeping me alive so far.

Anyway thanks for reading this it made me feel better writing it :)

Bestw ishes to all of you.

Dave 

Anonymous
  • FormerMember
    FormerMember

    Hi Dave - ive just joined as my sister has bowel cancer which has spread to her liver and lungs and lymph glands and i have been looking into Avastin too.  I am told its not a 'first-line' treatment and that its unlikely to be prescribed locally (Derbyshire) unless we can argue a very strong case so i am preparing to do so!!  

    Whats your story Dave

    How long have you been on it ?

  • FormerMember
    FormerMember

    Hi Dave I have had bowel cancer and am now free of it. I am sorry to hear of your plight to fund Avastin. It is terrible that the Trusts won't fund it for you. I wish you luck in your funding. Love Julie X

  • FormerMember
    FormerMember

    Hi Dave,

    Its a sad state of affairs when you have to pay for your own Treatment,in this day and age.You have  Wonderful Family and friends.Keep fighting my Friend.

    Take care and be safe Sarsfield.xxx

  • FormerMember
    FormerMember

    Paying for your own treatment Dave, that is disgusting. Take care love and enjoy your family...love Carol xx

  • FormerMember
    FormerMember

    Thanks for your messages.

    Hi pooky i have had 12 treatments so far of avastin in 2 week cycles, I also have a chemo that is paid for by PCT as Avastin works in conjunction with chemo it isnt I am told a stand alone treatment.

    Avastin is a life prolonging drug not a cure but my last scan showed it had stabalized and stopped spreading which is good.

    I have another scan tomorow friday 2nd and will see consultant on weds next week for results depending on what it happening will depend if he keeps prescribing it so will haver another 6 treatments then a scan.

    It has no seroiuse side effects for me and I feel so much better since i have been on it.

    It is expensive and you have to battle to get funding my PCT still say no even though we have appealed with new evidence it is working so hopefully the new scan shows even more improvement and we can appeal again.

    I have a lady called Kate Spall helping with my bid she has a lot of experience and helps people like us who are fighting for funding I can put you in touch if you want just let me know.

    Dave