When I was first diagnosed I was given the details of the oesophageal patients association (OPA)
I looked at all the details online and then filled out the online form and sent it off but never heard anything back but forgot about it mostly. I tried the hospice for support and that didnt really do it for me so chased up the OPA after some months and went to the first meeting last Saturday.
It was wonderful for me, I really benefitted from meeting other people with the same condition as I. They all had the knowing nods of the head when you were describing something and they all had their own versions of treatment and recovery. Most of them were post op which made me very jealous but it also gave me hope that I too might be there one day and helping other people get through it.
I have put the link below and know that all groups are different but I hope it helps someone else like it has done me.
www.opa.org.uk/patient.php
Its nearer results day so I shall post again on Friday or Saturday.
Love to all.
Joanne x x x
FormerMember
Hi Dizzy just want to say iv got everythingcrossed for you hope you get good news with your results, take care, julie x
Hi Joanne - I have fingers and toes crossed for you. I have been thinking of you all week and hope you are doing well. Thanks for sending us this link. I will be checking it out right away.
I’ve heard such good things about the Oesophageal Patients Association and I just wished I’d known about them, or indeed about any of these forums, when I’d been diagnosed. I suppose I just never thought to look. Many people have told me how the OPA has helped and supported them, so let’s hope that next year you too will be post-surgery and helping others. I don’t often reply to blogs I know, but that doesn’t mean to say I don’t think about you. Fingers crossed and good luck with your results tomorrow.
