MacMillan bloggers, I thank you

2 minute read time.

Hello, its been a while since I last posted here. December was a bit of a month and Christmas was a blur spent in the company of the ‘Cheese Eating Assassins’. I hope to do a longer post on these guys. And that’s not why I am writing today.

Suffice to say, it’s been truly gnarly over here on Exmoor and I wanted to get this post done first; and before one of my lovely team of drivers rolls up to trundle me of to Taunton for a radiotherapy planning session. And what I want to do is say thank you to all of you, here’s a name check of everyone that I can recall has been in touch via this community.

Millibob, Coddfish, Mmum, LozzaT, Ma78, Irishgirl16, BrightonBiker, Shaka4Lyfe, CandysMum, Gardener66, Dorset Girl and Ange19.

And sincere apologies to anyone that I have missed. My fatigue levels are so high now, I am so glad we invested in some comfy chairs and new sofas, I am the king of power naps now (although I think 2 straight hours at any time maybe more than a nap?)

My latest scans now show lesions in 13 discrete places. The liver is still favourite to pull the mortality card on me. Latest places are in my spine, vertebrate C6, C7 and L2. L2 is also starting to collapse. So, after 18 months, I am actually getting pain symptoms that we can directly relate to that 1cm bowel lesion, that has never really grown but will kill me none the less. Well, they do say that the little things count. This week, I will get some targeted radiotherapy that will hopefully reduce the tumour pressure on various nerves and reduce the pain.

I am not going to pretend that I am somehow coping with this well; boy, do I feel sad and my eyes well as I write this. And, I have never felt alone. The medics, my friends and family have all been great. I am truly overwhelmed by the love and care that I have received. And I want you people to know that you are in this group too. Thank you. Thank you for reading, thank you for the comments and thank you for the support.

I am going to keep this short, 40 minutes to my lift! A quick bit about me and a time limited offer to you. I am a 60-year-old man, married for 34 years, 3 grown up children and I have been very lucky. Born in a rich and peaceful country and raised with a good moral compass, I hope! I have had interesting jobs; I have managed Corfe Castle in Dorset and Dunster Castle out here on the moor. I have lived in the Cairngorms as a young man and in South Wales, Cambridgeshire, Suffolk and Norfolk. No complaints, well one, I would like to be around for a while longer. That seems unlikely.

‘Dignity Pants and Other Misnomers’ is named after the natty backless paper shorts I wore for a biopsy way back in August 2023. And Dignahtee is a simple corruption of dignity; but Dignahtee Pants would be my ‘Ugly Sister’ name in panto, or my drag queen name; two unfulfilled ambitions!

Thank you so much, I appreciate you all.

Anonymous
  • I like the idea of the cheese eating assassins. It will be a sad day when you can’t face eating cheese. I well remember my first chemotherapy appointment, when they gave me a list of all the things they didn’t want me to eat, and it contained most of the things I really love. I decided to ignore it, because amongst other things, a life with chemo and without blue cheese was going to be pretty miserable. 

    You have most certainly gone through this with dignity appropriate to your user name. I am sad this ‘journey’ is proving shorter than those of some of the fellow sufferers you list. Ultimately we are all moving through at our own pace and we learn a lot from the experiences and musings of others. I hope the radiotherapy brings a bit of pain relief and that you can continue to enjoy a little of the outdoor world that you clearly enjoy so much. 

  • I've been meaning to message you, having read all of your blog posts now (thoroughly enjoying them, although saddened by later developments). Your writing about nature reminded me of Robert MacFarlane and I wondered if you have read his books? 

    I live by the South Downs and really don't get out walking in nature as much as I'd like, but your writing has inspired me to try to change that. I hope you get some nature time too. 

    Thanks for your words of inspiration. 

  • It's really good to read you today. 

    So wonderful that you are offering of yourself still, in all that you're dealing with. I want to be just like you, when I eventually grow up...

    I hope that the radiotherapy alleviates your pain. 

    Thank you for the shout out. I always knew I was destined for fame! 

    Until next time,  peaceV tone5

  • Thank you so much Coddfish. I am so fatigued for much of the time but I am getting out a bit We do have a small suburban garden, backing onto a school playing field and then views up and into the edge of Exmoor National Park. And the bird life that we attract is just brilliant, well over 20 species. It is just brilliant, although quite expensive in bird food! Please can I share my top wildlife and nature tip with you? I appreciate that you are a nature buff too and don't want to state the 'b obvious'. The dawn chorus and the date that we change the clocks to Summer time, 30th March this year. The first week of BST is great for the dawn chorus, many birds are already in full song AND we have put their singing back by an hour! I hope to be around for this for one more time, to be able to sit quietly in my modest, mildly unkempt garden at 'not so silly o'clock' and listen to a the amazing sound of nature.

  • Thank you. I have found the interaction with other people in this community to be so supportive. I really wanted to say thank you and that was the prompt for yesterdays post (it did get moderated as I inadvertently broke the rules and put my actual name at the very end!)

    Robert MacFarlane. Wow, I am overwhelmed that you have seen a parallel between him and me. I have read some of his work. I started on his book about underground places, 'Underland' and found this very hard to read, it was as if he needed to use 20 long and unusual words when 6 would have done. So I gave up, and I may even have said some unkind words (sorry Robert!) And then last year, a friend recommended and lent to me 'The Old Ways'. My friend and I have explored a number of old hollow ways and drove roads locally on our mountain bikes and my friend is just brilliant at this. he lent me the book and I really enjoyed it and have recommended this to others and said lots of lovely things about it, It feels more personal, more genuine and the history of how people have created routes through and into the landscape (and seascape) was truly absorbing. 

    Is there one of his books that you would particularly recommend?

    Do get out in nature if you can. My last job with the National Trust was to help change the National Trust 'culture' re outdoors and nature and I recognise in myself how much this has added to my life and how lucky we are, even in overcrowded England (although we are quite rural this way!) to have urban parks, canal sides and odd overgrown corners. Nature can find it's way into our lives in so many ways, sometimes we just need to sit quietly and look and listen. For me, now, my small moderately unkempt garden is a true haven and very busy with winter birds. 

    Here is my top wildlife tip. On 30th March, we change the clocks, 'spring forward'. The week after is great for the dawn chorus, it will already be good and for a week or so, it is not at silly o'clock in the early hours. If you don't already do so, feed your garden birds, if you do, thank you!

    And last but not least, how are you doing?