Apologies
Not my usual tone of post at all.
My trip to London next week has now been cancelled and surgery kicked into an unknown future date by a ridiculous oversight by the London team.
Way back last summer, as part of the investigations into the lump that came up in my groin, it was discovered that I have a heart issue; mitral valve regurgitation. I'm a really fit person and an echocardiogram showed that my heart was healthy and pumping more blood than the average for my age. I had none of the symptoms associated with this condition.
So, priority, deal with the cancer, because that will kill you quite soon. The heart can wait, but we know about it and can mitigate for it as needed.
The proposed surgery is huge...15 hour operation, several days in ICU and a month in hospital.
The surgery team know about the heart valve in December.
Today, the working day before I am having my pre-op assessment the anaesthetist says that they want another echocardiogram.
Everything gets cancelled
The complex cancer team have sat on the info regarding my heart valve for four months! Four months during which that echocardiogram could have been requested.
This is truly incompetent
Do I want to entrust these people with my life during a 15 hour operation?
I may be better off taking my chances with the cancer.
Ok. I probably don't mean that and I think I will be mentally back on point in a day to two but I am so upset right now.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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